<description>In this Complex Care Journal Club podcast episode, Drs. Marcella Luercio and Bianca Quiñones-Pérez discuss a qualitative study of barriers to communication perceived by Spanish-speaking families with children with medical complexity admitted to the hospital. They describe the importance of multilingual representation in research, individual and systems-level changes to improve communication with families who speak languages other than English, and next steps from this work.

SPEAKERS
Marcella Luercio, MD
Pediatric Hospitalist
Boston Children's Hospital

Bianca Quiñones-Pérez, MD
Pediatric Hospitalist, Complex Care Services, 
Boston Children's Hospital
Instructor of Pediatrics, 
Harvard Medical School

HOST
Kathleen Huth, MD, MMSc
Pediatrician, Complex Care Service, Division of General Pediatrics
Boston Children's Hospital
Assistant Professor of Pediatrics
Harvard Medical School

DATE
Initial publication date: December 9, 2024.

JOURNAL CLUB ARTICLE
Luercio M, Quiñones-Pérez B, Castellanos A, Ngo T, Elder B, Blaine K, Haskell H, Lopez K, Luff D, Mallick N, Mercer AN, Williams DN, Baird JD, Khan A. Communicating With Spanish-Speaking Families of Hospitalized Children With Medical Complexity. Hosp Pediatr. 2024 Aug 1;14(8):612-621. doi: 10.1542/hpeds.2023-007700. PMID: 39069815.

OTHER REFERENCES
Ames SG, Delaney RK, Houtrow AJ, Delgado-Corcoran C, Alvey J, Watt MH, Murphy N. Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity. Pediatrics. 2023 Jul 1;152(1):e2022060975. doi: 10.1542/peds.2022-060975. PMID: 37357731.

Khan A, Baird J, Kelly MM, Blaine K, Chieco D, Haskell H, Lopez K, Ngo T, Mercer A, Quiñones-Pérez B, Schuster MA, Singer SJ, Viswanath K, Landrigan CP, Williams D, Luff D. Family Safety Reporting in Medically Complex Children: Parent, Staff, and Leader Perspectives. Pediatrics. 2022 Jun 1;149(6):e2021053913. doi: 10.1542/peds.2021-053913. PMID: 35615941; PMCID: PMC11088436.

Nelson K, Huth K. Choice and Voice: Family Perspectives on Decision-making for Children with Medical Complexity. 8/2024. OPENPediatrics. Online Podcast. https://youtu.be/WN5u0T4UnEU, https://soundcloud.com/openpediatrics/choice-and-voice-family-perspectives-on-decision-making-for-children-with-medical-complexity

Ragavan MI, Méndez DD, Caballero TM. Promoting Language Justice for Children With Medical Complexity and Their Families: An Urgent Call to Action. Hosp Pediatr. 2024 Aug 1;14(8):e358-e361. doi: 10.1542/hpeds.2024-007792. PMID: 39069818; PMCID: PMC11287058.

"Strategies for Working Effectively With Interpreters", a free course on OPENPediatrics.org
https://learn.openpediatrics.org/learn/courses/5662/strategies-for-effectively-working-with-interpreters/lessons

TRANSCRIPTS
English: https://cdn.bfldr.com/D6LGWP8S/at/phv45ptj67wp4c8j876qhvt/120924_CCJCP__Bridging_the_Communication_Gap__The_Role_of_Language_in_Complex_Care.pdf?format=pdf

Spanish: 
https://cdn.bfldr.com/D6LGWP8S/at/tv9jkxcn34h3j9mhpxh7p3t/Spanish_120924_CCJCP__Bridging_the_Communication_Gap__The_Role_of_Language_in_Complex_Care.pdf?format=pdf

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

CITATION
Luercio M, Quiñones-Pérez B, Huth K. Bridging the Communication Gap: The Role of Language in Complex Care. 12/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/bridging-the-communication-gap-the-role-of-language-in-complex-care.</description>

In this Complex Care Journal Club podcast episode…

In this Complex Care Journal Club podcast episode, Drs. Marcella Luercio and Bianca Quiñones-Pérez discuss a qualitative study of barriers to communication perceived by Spanish-speaking families with children with medical complexity admitted to the hospital. They describe the importance of multilingual representation in research, individual and systems-level changes to improve communication with families who speak languages other than English, and next steps from this work.

SPEAKERS
Marcella Luercio, MD
Pediatric Hospitalist
Boston Children's Hospital

Bianca Quiñones-Pérez, MD
Pediatric Hospitalist, Complex Care Services, 
Boston Children's Hospital
Instructor of Pediatrics, 
Harvard Medical School

HOST
Kathleen Huth, MD, MMSc
Pediatrician, Complex Care Service, Division of General Pediatrics
Boston Children's Hospital
Assistant Professor of Pediatrics
Harvard Medical School

DATE
Initial publication date: December 9, 2024.

JOURNAL CLUB ARTICLE
Luercio M, Quiñones-Pérez B, Castellanos A, Ngo T, Elder B, Blaine K, Haskell H, Lopez K, Luff D, Mallick N, Mercer AN, Williams DN, Baird JD, Khan A. Communicating With Spanish-Speaking Families of Hospitalized Children With Medical Complexity. Hosp Pediatr. 2024 Aug 1;14(8):612-621. doi: 10.1542/hpeds.2023-007700. PMID: 39069815.

OTHER REFERENCES
Ames SG, Delaney RK, Houtrow AJ, Delgado-Corcoran C, Alvey J, Watt MH, Murphy N. Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity. Pediatrics. 2023 Jul 1;152(1):e2022060975. doi: 10.1542/peds.2022-060975. PMID: 37357731.

Khan A, Baird J, Kelly MM, Blaine K, Chieco D, Haskell H, Lopez K, Ngo T, Mercer A, Quiñones-Pérez B, Schuster MA, Singer SJ, Viswanath K, Landrigan CP, Williams D, Luff D. Family Safety Reporting in Medically Complex Children: Parent, Staff, and Leader Perspectives. Pediatrics. 2022 Jun 1;149(6):e2021053913. doi: 10.1542/peds.2021-053913. PMID: 35615941; PMCID: PMC11088436.

Nelson K, Huth K. Choice and Voice: Family Perspectives on Decision-making for Children with Medical Complexity. 8/2024. OPENPediatrics. Online Podcast. https://youtu.be/WN5u0T4UnEU, https://soundcloud.com/openpediatrics/choice-and-voice-family-perspectives-on-decision-making-for-children-with-medical-complexity

Ragavan MI, Méndez DD, Caballero TM. Promoting Language Justice for Children With Medical Complexity and Their Families: An Urgent Call to Action. Hosp Pediatr. 2024 Aug 1;14(8):e358-e361. doi: 10.1542/hpeds.2024-007792. PMID: 39069818; PMCID: PMC11287058.

"Strategies for Working Effectively With Interpreters", a free course on OPENPediatrics.org
https://learn.openpediatrics.org/learn/courses/5662/strategies-for-effectively-working-with-interpreters/lessons

TRANSCRIPTS
English: https://cdn.bfldr.com/D6LGWP8S/at/phv45ptj67wp4c8j876qhvt/120924_CCJCP__Bridging_the_Communication_Gap__The_Role_of_Language_in_Complex_Care.pdf?format=pdf

Spanish: 
https://cdn.bfldr.com/D6LGWP8S/at/tv9jkxcn34h3j9mhpxh7p3t/Spanish_120924_CCJCP__Bridging_the_Communication_Gap__The_Role_of_Language_in_Complex_Care.pdf?format=pdf

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

CITATION
Luercio M, Quiñones-Pérez B, Huth K. Bridging the Communication Gap: The Role of Language in Complex Care. 12/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/bridging-the-communication-gap-the-role-of-language-in-complex-care.

Bridging the Communication Gap: The Role of Language in Complex Care

<description>In this World Shared Practice Forum podcast, Dr. Mark Peters discusses the Oxy-PICU trial, published in The Lancet in January 2024, which compared conservative to liberal oxygenation targets in critically ill children. The study highlighted the importance of pragmatic trial design and the need for larger trials to confirm these findings.

LEARNING OBJECTIVES
-Discuss the background driving the investigation of oxygenation in critically ill children  
-Summarize the study design of the Oxy-PICU Trial
-Present the outcomes and challenges of the Oxy-PICU Trial
-Identify the key characteristics of pragmatic trial design and the implication of pragmatic trial results

AUTHORS
Mark Peters﻿, MBChB, MRCP, FFICM, FRCPCH, PhD
Professor of Paediatric Intensive Care
NIHR Senior Investigator
UCL Great Ormond St Institute of Child Health
Hon. Consultant Paediatric Intensivist
Paediatric Intensive Care Unit and
Children’s Acute Transport Service
Great Ormond St Hospital

Jeffrey Burns, MD, MPH
Emeritus Chief 
Division of Critical Care Medicine
Department of Anesthesiology, Critical Care and Pain Medicine 
Boston Children's Hospital
Professor of Anesthesia
Harvard Medical School

DATE
Initial publication date: November 26, 2024.

ARTICLES REFERENCED AND ADDITIONAL RESOURCES
Peters MJ, Gould DW, Ray S, et al. Conservative versus liberal oxygenation targets in critically ill children (Oxy-PICU): a UK multicentre, open, parallel-group, randomised clinical trial [published correction appears in Lancet. 2024 Jan 27;403(10424):354. doi: 10.1016/S0140-6736(24)00100-4]. Lancet. 2024;403(10424):355-364. https://pubmed.ncbi.nlm.nih.gov/38048787/
 
Fan E, Del Sorbo L, Goligher EC, et al. An Official American Thoracic Society/European Society of Intensive Care Medicine/Society of Critical Care Medicine Clinical Practice Guideline: Mechanical Ventilation in Adult Patients with Acute Respiratory Distress Syndrome [published correction appears in Am J Respir Crit Care Med. 2017 Jun 1;195(11):1540. doi: 10.1164/rccm.19511erratum]. Am J Respir Crit Care Med. 2017;195(9):1253-1263. https://pubmed.ncbi.nlm.nih.gov/28459336/
 
Peters MJ, Ramnarayan P. Randomized Trials to Reduce Clinical Uncertainty: Gold Standard or Fool's Gold? Pediatr Crit Care Med. 2024;25(8):775-777. https://pubmed.ncbi.nlm.nih.gov/39101806/
 
Darnell R, Brown A, Laing E, et al. Protocol for a Randomized Controlled Trial to Evaluate a Permissive Blood Pressure Target Versus Usual Care in Critically Ill Children with Hypotension (PRESSURE). Pediatr Crit Care Med. 2024;25(7):629-637. https://pubmed.ncbi.nlm.nih.gov/38629915/
 
Taccone FS, Rynkowski Bittencourt C, Møller K, et al. Restrictive vs Liberal Transfusion Strategy in Patients With Acute Brain Injury: The TRAIN Randomized Clinical Trial. JAMA.Published online October 09, 2024. https://pubmed.ncbi.nlm.nih.gov/39382241/
 
Jones GAL, Eaton S, Orford M, et al. Randomization to a Liberal Versus Conservative Oxygenation Target: Redox Responses in Critically Ill Children. Pediatr Crit Care Med. 2023;24(3):e137-e146. https://pubmed.ncbi.nlm.nih.gov/36728001/
 
UK-ROX: https://www.icnarc.org/research-studies/uk-rox/
MegaROX: https://www.anzics.org/current-active-endorsed-research/mega-rox/
ICU-ROX: https://www.thebottomline.org.uk/summaries/icm/icu-rox/

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/rq7kgwqkh4hk4nk67584pfj/202411_-_WSP_-_Less_is_more_Oxygenation_Targets_in_Critically_Ill_Children_-_Transcript?position=2

CITATION
Peters MJ, Burns JP. Less is More: Oxygenation Targets in Critically Ill Children. 11/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/less-is-more-oxygenation-targets-in-critically-ill-children-by-m-peters-openpediatrics.</description>

In this World Shared Practice Forum podcast, Dr. …

In this World Shared Practice Forum podcast, Dr. Mark Peters discusses the Oxy-PICU trial, published in The Lancet in January 2024, which compared conservative to liberal oxygenation targets in critically ill children. The study highlighted the importance of pragmatic trial design and the need for larger trials to confirm these findings.

LEARNING OBJECTIVES
-Discuss the background driving the investigation of oxygenation in critically ill children  
-Summarize the study design of the Oxy-PICU Trial
-Present the outcomes and challenges of the Oxy-PICU Trial
-Identify the key characteristics of pragmatic trial design and the implication of pragmatic trial results

AUTHORS
Mark Peters﻿, MBChB, MRCP, FFICM, FRCPCH, PhD
Professor of Paediatric Intensive Care
NIHR Senior Investigator
UCL Great Ormond St Institute of Child Health
Hon. Consultant Paediatric Intensivist
Paediatric Intensive Care Unit and
Children’s Acute Transport Service
Great Ormond St Hospital

Jeffrey Burns, MD, MPH
Emeritus Chief 
Division of Critical Care Medicine
Department of Anesthesiology, Critical Care and Pain Medicine 
Boston Children's Hospital
Professor of Anesthesia
Harvard Medical School

DATE
Initial publication date: November 26, 2024.

ARTICLES REFERENCED AND ADDITIONAL RESOURCES
Peters MJ, Gould DW, Ray S, et al. Conservative versus liberal oxygenation targets in critically ill children (Oxy-PICU): a UK multicentre, open, parallel-group, randomised clinical trial [published correction appears in Lancet. 2024 Jan 27;403(10424):354. doi: 10.1016/S0140-6736(24)00100-4]. Lancet. 2024;403(10424):355-364. https://pubmed.ncbi.nlm.nih.gov/38048787/
 
Fan E, Del Sorbo L, Goligher EC, et al. An Official American Thoracic Society/European Society of Intensive Care Medicine/Society of Critical Care Medicine Clinical Practice Guideline: Mechanical Ventilation in Adult Patients with Acute Respiratory Distress Syndrome [published correction appears in Am J Respir Crit Care Med. 2017 Jun 1;195(11):1540. doi: 10.1164/rccm.19511erratum]. Am J Respir Crit Care Med. 2017;195(9):1253-1263. https://pubmed.ncbi.nlm.nih.gov/28459336/
 
Peters MJ, Ramnarayan P. Randomized Trials to Reduce Clinical Uncertainty: Gold Standard or Fool's Gold? Pediatr Crit Care Med. 2024;25(8):775-777. https://pubmed.ncbi.nlm.nih.gov/39101806/
 
Darnell R, Brown A, Laing E, et al. Protocol for a Randomized Controlled Trial to Evaluate a Permissive Blood Pressure Target Versus Usual Care in Critically Ill Children with Hypotension (PRESSURE). Pediatr Crit Care Med. 2024;25(7):629-637. https://pubmed.ncbi.nlm.nih.gov/38629915/
 
Taccone FS, Rynkowski Bittencourt C, Møller K, et al. Restrictive vs Liberal Transfusion Strategy in Patients With Acute Brain Injury: The TRAIN Randomized Clinical Trial. JAMA.Published online October 09, 2024. https://pubmed.ncbi.nlm.nih.gov/39382241/
 
Jones GAL, Eaton S, Orford M, et al. Randomization to a Liberal Versus Conservative Oxygenation Target: Redox Responses in Critically Ill Children. Pediatr Crit Care Med. 2023;24(3):e137-e146. https://pubmed.ncbi.nlm.nih.gov/36728001/
 
UK-ROX: https://www.icnarc.org/research-studies/uk-rox/
MegaROX: https://www.anzics.org/current-active-endorsed-research/mega-rox/
ICU-ROX: https://www.thebottomline.org.uk/summaries/icm/icu-rox/

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/rq7kgwqkh4hk4nk67584pfj/202411_-_WSP_-_Less_is_more_Oxygenation_Targets_in_Critically_Ill_Children_-_Transcript?position=2

CITATION
Peters MJ, Burns JP. Less is More: Oxygenation Targets in Critically Ill Children. 11/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/less-is-more-oxygenation-targets-in-critically-ill-children-by-m-peters-openpediatrics.

Less is More: Oxygenation Targets in Critically Ill Children by M. Peters | OPENPediatrics

<description>In this new Nursing World Shared Practice Forum podcast, Dr. Sharon Tucker reviews the foundations of Evidence-Based Practice and why it is important to nursing science. She discusses her body of work focusing on building evidence, implementing evidence into practice, and using frameworks that support Implementation Science. She explains how Implementation Science and Quality Improvement Science are related and how they can work together to improve nursing care.

LEARNING OBJECTIVES
- Explain the three elements that comprise evidence-based practice
- Discuss reasons for gaps between translating evidence into practice
- Explain Implementation Science
- Discuss similarities and differences between Quality Improvement and Implementation Science

AUTHORS
Sharon Tucker, PhD, RN, PMHCNS-BC, NC-BC, EBP-C, FNAP, FAAN
Professor and Chair of the Department of Nursing Practice 
College of Nursing
University of Central Florida

Debra Lajoie, PhD, JD, MSN, RN, LNC, Nursing
Director of Nursing Research for Surgical Programs
Nurse Scientist Surgical Programs
Boston Children's Hospital

DATE
Initial publication date: November 18, 2024.

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/gcvz79mz5qt8k86bkgrqsrh4/Transcript_Template_NWSP_Tucker_111324

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Tucker SJ, Marcley S, DeGrazia M, ﻿Lajoie D﻿﻿. Evidence-Based Practice and Implementation Science in Nursing. 11/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/evidence-based-practice-and-implementation-science-in-nursing-by-s-tucker-openpediatrics.</description>

In this new Nursing World Shared Practice Forum p…

In this new Nursing World Shared Practice Forum podcast, Dr. Sharon Tucker reviews the foundations of Evidence-Based Practice and why it is important to nursing science. She discusses her body of work focusing on building evidence, implementing evidence into practice, and using frameworks that support Implementation Science. She explains how Implementation Science and Quality Improvement Science are related and how they can work together to improve nursing care.

LEARNING OBJECTIVES
- Explain the three elements that comprise evidence-based practice
- Discuss reasons for gaps between translating evidence into practice
- Explain Implementation Science
- Discuss similarities and differences between Quality Improvement and Implementation Science

AUTHORS
Sharon Tucker, PhD, RN, PMHCNS-BC, NC-BC, EBP-C, FNAP, FAAN
Professor and Chair of the Department of Nursing Practice 
College of Nursing
University of Central Florida

Debra Lajoie, PhD, JD, MSN, RN, LNC, Nursing
Director of Nursing Research for Surgical Programs
Nurse Scientist Surgical Programs
Boston Children's Hospital

DATE
Initial publication date: November 18, 2024.

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/gcvz79mz5qt8k86bkgrqsrh4/Transcript_Template_NWSP_Tucker_111324

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Tucker SJ, Marcley S, DeGrazia M, ﻿Lajoie D﻿﻿. Evidence-Based Practice and Implementation Science in Nursing. 11/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/evidence-based-practice-and-implementation-science-in-nursing-by-s-tucker-openpediatrics.

Evidence-Based Practice and Implementation Science in Nursing by S. Tucker | OPENPediatrics

<description>In this special Complex Care Journal Club podcast episode, co-hosts Drs. Kilby Mann and Kristie Malik interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 78th Annual Meeting in Quebec City, Canada that took place October 23rd-26th 2024. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years.

SPEAKERS
Tori Bahr, MD
MedPeds Complex Care Physician
Section Chief of Pediatrics
Gillette Children's, St. Paul, Minnesota

Laura Brunton, PT, PhD 
Associate Professor 
School of Physical Therapy 
Western University, London, Ontario

Caitlin Cassidy, MD
Associate Professor
Departments of Physical Medicine &amp; Rehabilitation and Pediatrics
Western University, London, Ontario

Adam Rosenbloom, MD, MPH
Complex Care Pediatrician
Dell Children's Medical Center
University of Texas at Austin, Dell Medical School

Cristina Sarmiento, MD
Assistant Professor
Department of Physical Medicine and Rehabilitation
University of Colorado Anschutz Medical Campus, Aurora, Colorado

Julie Stutzbach, PT, DPT, PhD
Assistant Professor 
School of Rehabilitative and Health Sciences
Regis University, Denver, Colorado

HOSTS
Kristina Malik, MD
Assistant Professor of Pediatrics,
University of Colorado School of Medicine
Medical Director, KidStreet
Pediatrician, Special Care Clinic,
Children's Hospital Colorado

Kilby Mann, MD
Assistant Professor
Pediatric Rehabilitation Medicine
Children's Hospital Colorado

DATE
Initial publication date: November 11, 2024. 

ARTICLES AND ADDITIONAL REFERENCES
• American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), https://www.aacpdm.org/

• AACPDM Complex Care Committee (https://www.aacpdm.org/about-us/committees/complex-care)

• Houtrow AJ, Hurwitz MB. A dearth of disability-related competencies in Accreditation Council for Graduate Medical Education's Milestones 2.0. PM R. 2024 Aug 23. doi: 10.1002/pmrj.13257. Epub ahead of print. PMID: 39177053.﻿

• Fehlings D, Agnew B, Gimeno H, Harvey A, Himmelmann K, Lin JP, Mink JW, Monbaliu E, Rice J, Bohn E, Falck-Ytter Y. Pharmacological and neurosurgical management of cerebral palsy and dystonia: Clinical practice guideline update. Dev Med Child Neurol. 2024 Sep;66(9):1133-1147. doi: 10.1111/dmcn.15921. Epub 2024 Apr 19. PMID: 38640091.

• AACPDM Care Pathway Dystonia in Cerebral Palsy, https://www.aacpdm.org/publications/care-pathways/dystonia-in-cerebral-palsy

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/p9pj6g7sxn5kjmmgps5wnk4/111124_-_Complex_Care_at_the_American_Academy_for_Cerebral_Palsy_and_Developmental_Medicine_Annual_Meeting

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

CITATION
Malik K, Bahr T, Brunton L, Cassidy C, Rosenbloom A, Sarmiento C, Stuzbach J, Mann K. Complex Care at the American Academy for Cerebral Palsy and Developmental Medicine Annual Meeting. 11/2024. OPENPediatrics. Online Podcast.. https://soundcloud.com/openpediatrics/complex-care-at-the-aacpdm-2024.</description>

In this special Complex Care Journal Club podcast…

In this special Complex Care Journal Club podcast episode, co-hosts Drs. Kilby Mann and Kristie Malik interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 78th Annual Meeting in Quebec City, Canada that took place October 23rd-26th 2024. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years.

SPEAKERS
Tori Bahr, MD
MedPeds Complex Care Physician
Section Chief of Pediatrics
Gillette Children's, St. Paul, Minnesota

Laura Brunton, PT, PhD 
Associate Professor 
School of Physical Therapy 
Western University, London, Ontario

Caitlin Cassidy, MD
Associate Professor
Departments of Physical Medicine & Rehabilitation and Pediatrics
Western University, London, Ontario

Adam Rosenbloom, MD, MPH
Complex Care Pediatrician
Dell Children's Medical Center
University of Texas at Austin, Dell Medical School

Cristina Sarmiento, MD
Assistant Professor
Department of Physical Medicine and Rehabilitation
University of Colorado Anschutz Medical Campus, Aurora, Colorado

Julie Stutzbach, PT, DPT, PhD
Assistant Professor 
School of Rehabilitative and Health Sciences
Regis University, Denver, Colorado

HOSTS
Kristina Malik, MD
Assistant Professor of Pediatrics,
University of Colorado School of Medicine
Medical Director, KidStreet
Pediatrician, Special Care Clinic,
Children's Hospital Colorado

Kilby Mann, MD
Assistant Professor
Pediatric Rehabilitation Medicine
Children's Hospital Colorado

DATE
Initial publication date: November 11, 2024. 

ARTICLES AND ADDITIONAL REFERENCES
• American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), https://www.aacpdm.org/

• AACPDM Complex Care Committee (https://www.aacpdm.org/about-us/committees/complex-care)

• Houtrow AJ, Hurwitz MB. A dearth of disability-related competencies in Accreditation Council for Graduate Medical Education's Milestones 2.0. PM R. 2024 Aug 23. doi: 10.1002/pmrj.13257. Epub ahead of print. PMID: 39177053.﻿

• Fehlings D, Agnew B, Gimeno H, Harvey A, Himmelmann K, Lin JP, Mink JW, Monbaliu E, Rice J, Bohn E, Falck-Ytter Y. Pharmacological and neurosurgical management of cerebral palsy and dystonia: Clinical practice guideline update. Dev Med Child Neurol. 2024 Sep;66(9):1133-1147. doi: 10.1111/dmcn.15921. Epub 2024 Apr 19. PMID: 38640091.

• AACPDM Care Pathway Dystonia in Cerebral Palsy, https://www.aacpdm.org/publications/care-pathways/dystonia-in-cerebral-palsy

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/p9pj6g7sxn5kjmmgps5wnk4/111124_-_Complex_Care_at_the_American_Academy_for_Cerebral_Palsy_and_Developmental_Medicine_Annual_Meeting

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

CITATION
Malik K, Bahr T, Brunton L, Cassidy C, Rosenbloom A, Sarmiento C, Stuzbach J, Mann K. Complex Care at the American Academy for Cerebral Palsy and Developmental Medicine Annual Meeting. 11/2024. OPENPediatrics. Online Podcast.. https://soundcloud.com/openpediatrics/complex-care-at-the-aacpdm-2024.

Complex Care at the American Academy for Cerebral Palsy and Developmental Medicine Annual Meeting

<description>In this World Shared Practice Forum podcast, we discuss the Pediatric Sepsis Data CoLaboratory (Sepsis CoLab), an international open data-sharing network to address pediatric sepsis mortality and morbidity. Drs. Kissoon, Ansermino, and Akech discuss the challenges related to the collection and sharing of data in a global context, the latest advancements in sepsis research and treatment, and how they believe this work will drive better patient outcomes.

LEARNING OBJECTIVES
- Recognize the role of the Sepsis CoLab in global sepsis care
- Describe the challenges and strategies for data sharing in healthcare
- Summarize the importance of standardized data collection in sepsis research
- Discuss some specific examples of how data can be used to support initiatives to improve the care of children with sepsis

AUTHORS
Niranjan "Tex" Kissoon﻿, MBBS, FRCP(C), MCCM, FACPE
Professor, Department of Pediatrics, 
University of British Columbia,
Investigator, BCCH Research Institute
President, Global Sepsis Alliance
Institute for Global Health
BC Children's Hospital and BC Women's Hospital &amp; Health Centre

Mark Ansermino, MBBCh
Professor
University of British Columbia
Executive Medical Director for Global Health
BC Children's Hospital

Samuel Akech﻿, MD,
Consultant Pediatrician &amp; Epidemiologist
KEMRI-Wellcome Trust

DATE
Initial publication date: October 21, 2024.

ADDITIONAL RESOURCES
Sepsis CoLab: https://wfpiccs.org/pediatric-sepsis-colab/

Pediatric Sepsis CoLab Membership Application: https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Kissoon NT, Ansermino JM, Akech S, Wolkbrink TA. Improving Sepsis Care: A Data-Driven Approach. 10/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/improving-sepsis-care-a-data-driven-approach-openpediatrics.</description>

In this World Shared Practice Forum podcast, we d…

In this World Shared Practice Forum podcast, we discuss the Pediatric Sepsis Data CoLaboratory (Sepsis CoLab), an international open data-sharing network to address pediatric sepsis mortality and morbidity. Drs. Kissoon, Ansermino, and Akech discuss the challenges related to the collection and sharing of data in a global context, the latest advancements in sepsis research and treatment, and how they believe this work will drive better patient outcomes.

LEARNING OBJECTIVES
- Recognize the role of the Sepsis CoLab in global sepsis care
- Describe the challenges and strategies for data sharing in healthcare
- Summarize the importance of standardized data collection in sepsis research
- Discuss some specific examples of how data can be used to support initiatives to improve the care of children with sepsis

AUTHORS
Niranjan "Tex" Kissoon﻿, MBBS, FRCP(C), MCCM, FACPE
Professor, Department of Pediatrics, 
University of British Columbia,
Investigator, BCCH Research Institute
President, Global Sepsis Alliance
Institute for Global Health
BC Children's Hospital and BC Women's Hospital & Health Centre

Mark Ansermino, MBBCh
Professor
University of British Columbia
Executive Medical Director for Global Health
BC Children's Hospital

Samuel Akech﻿, MD,
Consultant Pediatrician & Epidemiologist
KEMRI-Wellcome Trust

DATE
Initial publication date: October 21, 2024.

ADDITIONAL RESOURCES
Sepsis CoLab: https://wfpiccs.org/pediatric-sepsis-colab/

Pediatric Sepsis CoLab Membership Application: https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Kissoon NT, Ansermino JM, Akech S, Wolkbrink TA. Improving Sepsis Care: A Data-Driven Approach. 10/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/improving-sepsis-care-a-data-driven-approach-openpediatrics.

OPENPediatrics

Details

Recent Episodes