<p>In this deeply personal episode, my wife and I share the story of our daughter, Zara, who was diagnosed with a rare metabolic condition called Isovaleric Acidemia (IVA).</p><p>From the moment of diagnosis to navigating daily life, we open up about what IVA really means — not just medically, but through the lens of two parents learning, adapting, and advocating for our child.</p><p>We also address the many questions we’ve received from family and friends, breaking down complex ideas into simple, honest conversations around diet, safety, and what the future may look like.</p><p>Along the way, we reflect on powerful stories from other families, highlighting the life-changing importance of early newborn screening and greater awareness.</p><p>This is not just a story about a condition — it’s a story about resilience, learning, and the reality of parenting when everything changes.</p><p><br></p><p>Support and follow Teachable the Podcast here: <a href="https://linktr.ee/snapperturtlestudios" target="_blank" rel="noopener noreferer">https://linktr.ee/snapperturtlestudios</a></p><p>Find more IVA information here: <a href="https://rarediseases.org/rare-diseases/acidemia-isovaleric/" target="_blank" rel="noopener noreferer">https://rarediseases.org/rare-diseases/acidemia-isovaleric/</a></p><p>Find our amazing Dr. Amal here: <a href="https://www.instagram.com/dr.amalaltenaiji/ " target="_blank" rel="noopener noreferer">https://www.instagram.com/dr.amalaltenaiji/ </a></p>