Lichen Sclerosus Podcast

Living with vulvar lichen sclerosus (VLS) can really shake things up, especially when it comes to feeling confident and connected in your intimate life. You're not alone! A huge 94.3% of our community shared that VLS has impacted their sexual health, with pain, fear, low desire, and feeling "broken" or "frustrated" as common struggles.But here's the amazing news: You don't have to stay there. We heard your calls for more support and resources, and that's why we're so excited to bring back our special workshop, "Get Your Sexy Back," in 2025!This isn't just any workshop. We've poured our hearts into making this a safe, empowering space specifically for people with VLS. We've teamed up with Shauna, a somatic sex educator who truly understands chronic pain, to guide you on a journey of self-discovery and sexual rebirth.What to expect from "Get Your Sexy Back":Small, Intimate Group: We keep things cozy (only 20 spots!) so you can build trust and connect with others who truly get it.Safe & Private Space: All sessions are held in our private, off-social-media community, where your privacy and comfort are our top priority.You-Focused Journey: This workshop is all about you! We'll help you rediscover your body, your desires, and your confidence before bringing in partner dynamics.Expert Guidance: Learn from Shauna, our amazing somatic sex educator, and gain insights from a healthcare provider on pain management during sex.Transformative Practices: Each week builds on the last with practical tools and exercises to help you integrate what you learn into your daily life.Flexibility: Can't make a live session? No worries! Replays are available, and you'll have 24/7 access to our private community for ongoing support and connection.Welcome Party: Get to know your fellow participants in a low-stress, fun environment before diving into the deeper topics.This workshop is for you if you:Are further along in your VLS journey and can experience mostly pain-free sex.Are ready to overcome mental blocks, low libido, fear, or embarrassment around intimacy.Want to confidently express your desires and boundaries.Are willing to engage and participate in practices for real transformation.Ready to reclaim your pleasure and step into your full, confident self?Limited Spots Available! Last time, 75% of seats were sold on day one. Our waitlist is already almost at 60 people, and we only have 20 spots!Workshop Details:Welcome Session: July 24th, 2025Live Lessons: Weekly on Thursdays from July 31st through October 31st (with a break in September).Time: 4-6 PM Pacific / 7-9 PM EasternInvestment: $1200 (payment plans available: 4 monthly payments of $300) - and it's tax-deductible!Learn more and register today at: lssupportnetwork.org/getsexyHave questions? Check out our FAQ on the page or email us at [email protected]. We're here for you!#LichenSclerosus #VLS #SexualHealth #WomensHealth #Intimacy #Empowerment #GetYourSexyBack #ChronicIllness #BodyPositivity #Nonprofit

Are you living with Lichen Sclerosus? This podcast episode dives into the Wholistic Healing Summit, a patient-focused virtual event hosted by the Lichen Sclerosus Support Network (LSSN). LSSN's Kathy shares details about the summit's comprehensive program, featuring leading medical experts, sessions on intimacy and self-esteem, and practical advice for daily living. Learn about the different ticket options and how this summit can provide education, support, and community for those affected by LS.Get your ticket today! - https://lssupportnetwork.org/whsGot questions? Email us at [email protected] in this episode:Don't miss the Art for Empowerment LSSN AuctionLooking for a gift with a story? Don't miss the Lichen Sclerosus Support Network’s 'Art for Empowerment' auction. We’re raising funds to provide vital education and support for people with vulvar lichen sclerosus. Every bid helps us give a gift that truly changes lives. https://lssupportnetwork.org/auction

Episode Description:Welcome to the Lichen Sclerosus Podcast brought to you by the Lichen Sclerosus Support Network. I'm your host, Kathy, and today we’re excited to bring you a conversation with an amazing researcher, Leia Mitchell. If you’ve listened before, you might recognize her from past episodes. This time, we’re diving into a new possible treatment for Lichen Sclerosus.What You’ll Learn in This Episode:Insights into two groundbreaking studies on silicone-based treatments for Lichen Sclerosus.The science behind silicone’s effects on collagen production and skin rejuvenation.What makes this new treatment non-steroidal and why that matters.Eligibility requirements and what participation in the study entails.Special Guest:Meet Leia Mitchell, a passionate and knowledgeable physician assistant with extensive experience in Lichen Sclerosus treatment and clinical research. Her expertise and dedication make her a valuable voice in the LS space.Key Moments:1:49 – Discussion of two studies: one completed and one actively recruiting participants in Florida, DC, and NYC.3:35 – Leia explains how silicone aids collagen production and benefits skin conditions, including burn victims.5:21 – Application process: The silicone gel is easy to use—dab and rub gently over affected areas.6:26 – Leia highlights the need for effective LS treatments and shares how she became involved in the study.7:14 – The appeal of non-steroidal treatments and how Leia encountered this promising solution.9:24 – Study requirements: participants must have an active LS diagnosis, abstain from steroids or other topicals, and undergo pre- and post-study biopsies.13:10 – The study is initially limited to five participants, but a larger trial may follow pending positive results.15:09 – Leia shares her excitement for the study’s potential outcomes and outlines the 10-week process, which includes subjective results announced after publication.34:01 – Leia discusses the goal of FDA approval to make the treatment accessible and affordable for patients through insurance coverage.Connect with Us:Visit the Lichen Sclerosus Support Network for more resources: lssupportnetwork.orgGet more information on the study at https://clinicaltrials.gov/study/NCT06662942?cond=stratamgt&rank=2or email the CVVD at [email protected] in this episode:Don't miss the Art for Empowerment LSSN AuctionLooking for a gift with a story? Don't miss the Lichen Sclerosus Support Network’s 'Art for Empowerment' auction. We’re raising funds to provide vital education and support for people with vulvar lichen sclerosus. Every bid helps us give a gift that truly changes lives. https://lssupportnetwork.org/auction

Join Kathy and Sienna as they introduce the "Unstoppable You" workshop, designed specifically for young adults with lichen sclerosus (LS). They'll discuss the inspiration behind the workshop, its unique features, and how it can empower young people to thrive with LS.Key Takeaways:The "Unstoppable You" workshop is a 5-week program created to help young adults navigate the challenges of LS with confidence.The workshop will cover topics such as communicating about LS, redefining intimacy, embracing pleasure, and building self-confidence.Participants will have access to expert guidance, interactive sessions, a private online community, and evidence-based education.The workshop starts on February 17th and runs until April 7th, with the community remaining open through May.Early bird pricing is available from February 3rd to 10th.Call to Action:Visit https://lssupportnetwork.org/unstoppable to learn more and register for the "Unstoppable You" workshop.Join the LSSN email list to stay updated on future events and resources: lssupportnetwork.org/subscribeChapter Markers:00:00 Welcome to the Lichen Sclerosus Podcast00:38 Meet Sienna: Chief Fundraising Officer01:48 Sienna's Journey with Lichen Sclerosus03:03 Creating a Workshop for Young People04:25 Workshop Structure and Goals07:56 Workshop Sessions Overview14:59 Pricing and Registration Details18:13 Final Thoughts and EncouragementConnect with LSSN:Website: lssupportnetwork.orgEmail: [email protected] in this episode:Don't miss the Art for Empowerment LSSN AuctionLooking for a gift with a story? Don't miss the Lichen Sclerosus Support Network’s 'Art for Empowerment' auction. We’re raising funds to provide vital education and support for people with vulvar lichen sclerosus. Every bid helps us give a gift that truly changes lives. https://lssupportnetwork.org/auction

Join us for an insightful conversation with Dr. Jill Krapf, a leading expert in vulvar lichen sclerosus (LS), as we discuss the challenges and opportunities in LS care and introduce the Provider Continuous Education Program (PCEP).Why Provider Education Matters:LS is often misdiagnosed or diagnosed late, leading to years of unnecessary suffering for patients.   Many healthcare providers lack the knowledge and training to properly diagnose and manage LS.   The PCEP will equip providers with the tools and resources they need to provide effective, patient-centered LS care.   How the PCEP Will Make a Difference:The PCEP will provide comprehensive education on LS, covering diagnosis, treatment, and patient communication.   It will feature expert-led training by experienced LS specialists.   It will focus on evidence-based practices and patient-centered care.   It will create a network of knowledgeable healthcare providers who can support each other and share best practices.   Call to Action:Support the PCEP and help us transform the future of LS care. Your donation will directly impact the lives of those affected by this often-misunderstood condition.Donate to LSSN's Campaign: https://lssupportnetwork.org/givingtuesdayAdditional Resources:Learn more about LSSN's programs and resources: https://lssupportnetwork.orgJoin LSSN's online community: https://lssupportnetwork.org/membershipAttend LSSN's Giving Tuesday live events: https://lssupportnetwork.org/givingtuesdayThank you for listening and for your support!Mentioned in this episode:Don't miss the Art for Empowerment LSSN AuctionLooking for a gift with a story? Don't miss the Lichen Sclerosus Support Network’s 'Art for Empowerment' auction. We’re raising funds to provide vital education and support for people with vulvar lichen sclerosus. Every bid helps us give a gift that truly changes lives. https://lssupportnetwork.org/auction