<p><span style="background-color: transparent;">In this powerful episode of </span><em style="background-color: transparent;">Living Transplant</em><span style="background-color: transparent;">, Fadia shares her deeply personal journey through kidney disease, receiving a living donor transplant from her sister, and now navigating a return to dialysis. With honesty and vulnerability, she reflects on the evolution of her mindset—from a “go, go, go” approach to one rooted in acceptance, rest, and self-compassion.</span></p><p><br></p><p><span style="background-color: transparent;">Fadia opens up about the realities of invisible illness, balancing motherhood and a demanding career in education, and the emotional complexity of asking for and receiving help. She also speaks to the power of community through the ACB Organ Health Committee, and how advocacy, culturally safe care, and representation are critical in improving outcomes for Black patients.</span></p><p><br></p><p><span style="background-color: transparent;">This episode is a reminder that transplant is not a cure, but part of a lifelong journey. Fadia’s story encourages listeners to slow down, speak up, and redefine what strength truly looks like.</span></p><p><br></p><h3><strong style="background-color: transparent;">Key Topics</strong></h3><ul><li><span style="background-color: transparent;">Living donor kidney transplant and sibling donation</span></li><li><span style="background-color: transparent;">Returning to dialysis after transplant</span></li><li><span style="background-color: transparent;">Redefining “balance” and embracing rest</span></li><li><span style="background-color: transparent;">Invisible illness and “you don’t look sick”</span></li><li><span style="background-color: transparent;">Motherhood, career, and chronic illness</span></li><li><span style="background-color: transparent;">The importance of support systems and asking for help</span></li><li><span style="background-color: transparent;">Patient advocacy and being the expert of your own body</span></li><li><span style="background-color: transparent;">Navigating the healthcare system and medical mistrust</span></li><li><span style="background-color: transparent;">Cultural safety and equity in organ donation and transplantation</span></li><li><span style="background-color: transparent;">The impact of community: ACB Organ Health Committee</span></li></ul><p><br></p><h3><strong style="background-color: transparent;">Links&nbsp;</strong></h3><p><span style="background-color: transparent;">Learn more about living organ donation: www.livingorgandonation.ca</span></p><p><span style="background-color: transparent;">Living Kidney &amp; Liver Donation at UHN: </span><a href="https://www.uhn.ca/Transplant/Kidney_Transplant_Program" target="_blank" style="background-color: transparent; color: rgb(17, 85, 204);">UHN Ajmera Transplant Centre</a></p><p><span style="background-color: transparent;">Information Sessions for potential donors: </span><a href="http://givelifeuhn.eventbrite.ca" target="_blank" style="background-color: transparent; color: rgb(17, 85, 204);">givelifeuhn.eventbrite.ca</a><span style="background-color: transparent;">&nbsp; </span></p><p>Becoming a living donor:<strong style="background-color: transparent;"> </strong><a href="https://www.uhn.ca/Transplant/Pages/become_living_donor.aspx" target="_blank" style="background-color: transparent; color: rgb(17, 85, 204);">https://www.uhn.ca/Transplant/Pages/become_living_donor.aspx</a></p><p><span style="background-color: transparent;">ACB Organ Health Committee &amp; Green Table Talk: </span><a href="https://www.youtube.com/@acborganhealth" target="_blank" style="background-color: transparent; color: rgb(0, 0, 0);">https://www.youtube.com/@acborganhealth</a><span style="background-color: transparent;">&nbsp;&nbsp;</span></p><p><span style="background-color: transparent;">Black Health Alliance:</span><a href="https://blackhealthalliance.ca" target="_blank" style="background-color: transparent; color: rgb(0, 0, 0);"> https://blackhealthalliance.ca</a></p><p><span style="background-color: transparent;">Kidney Foundation of Canada – Living Donation </span><a href="https://kidney.ca/Get-Involved/Be-a-Living-Donor" target="_blank" style="background-color: transparent; color: rgb(17, 85, 204);">https://kidney.ca/Get-Involved/Be-a-Living-Donor</a></p><p><span style="background-color: transparent;">Trillium Gift of Life Network – Organ Donation in Ontario</span></p><p><a href="https://www.giftoflife.on.ca" target="_blank" style="background-color: transparent; color: rgb(17, 85, 204);">https://www.giftoflife.on.ca</a></p><p><br></p><p><span style="background-color: transparent;">Each episode, we share patient stories about organ donation from transplant recipients and living donors, along with insights and education from leading medical experts. Whether you’re a patient, a caregiver, a donor, or simply curious about the world of organ transplantation, you’ll hear expert advice and inspiring journeys of hope, resilience, and second chances.</span></p><p><br></p><p><strong style="background-color: transparent;">About our Host</strong></p><p><span style="background-color: transparent;">Candice Coghlan is the Education &amp; Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre. She is also a board member for the National Kidney Foundation and a kidney transplant recipient. </span><span style="background-color: transparent; color: rgb(33, 37, 41);">After she was diagnosed with kidney failure in her early 20s, she was on dialysis until receiving a transplant from her mother.</span></p><p><br></p><p><span style="background-color: transparent;">Have questions? Comments? Ideas for an episode? Please reach out to the</span><a href="https://www.uhn.ca/Transplant/Living_Donor_Program/Centre_for_Living_Organ_Donation" target="_blank" style="background-color: transparent; color: rgb(0, 0, 0);"> </a><a href="https://www.uhn.ca/Transplant/Living_Donor_Program/Centre_for_Living_Organ_Donation" target="_blank" style="background-color: transparent; color: rgb(17, 85, 204);">Centre for Living Organ Donation</a><span style="background-color: transparent;"> at livingorgandonation@uhn.ca. Thanks for spending your time with us.</span></p><p><br></p><p><span style="background-color: transparent;">The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network.</span></p><p><br></p>

Living Transplant: Patient Stories | Organ Donation | Medical Experts

[email protected] (Living Transplant: Patient Stories | Organ Donation | Medical Experts with Candice Coghlan. Supported by the Ajmera Transplant Centre, Toronto General Hospital, UHN)

You Don’t Look Sick: Fadia on Invisible Illness, Advocacy, Redefining Life on Dialysis, and the Transplant Journey

APR 16, 202638 MIN
Living Transplant: Patient Stories | Organ Donation | Medical Experts

You Don’t Look Sick: Fadia on Invisible Illness, Advocacy, Redefining Life on Dialysis, and the Transplant Journey

APR 16, 202638 MIN

Description

In this powerful episode of Living Transplant, Fadia shares her deeply personal journey through kidney disease, receiving a living donor transplant from her sister, and now navigating a return to dialysis. With honesty and vulnerability, she reflects on the evolution of her mindset—from a “go, go, go” approach to one rooted in acceptance, rest, and self-compassion.Fadia opens up about the realities of invisible illness, balancing motherhood and a demanding career in education, and the emotional complexity of asking for and receiving help. She also speaks to the power of community through the ACB Organ Health Committee, and how advocacy, culturally safe care, and representation are critical in improving outcomes for Black patients.This episode is a reminder that transplant is not a cure, but part of a lifelong journey. Fadia’s story encourages listeners to slow down, speak up, and redefine what strength truly looks like.Key TopicsLiving donor kidney transplant and sibling donationReturning to dialysis after transplantRedefining “balance” and embracing restInvisible illness and “you don’t look sick”Motherhood, career, and chronic illnessThe importance of support systems and asking for helpPatient advocacy and being the expert of your own bodyNavigating the healthcare system and medical mistrustCultural safety and equity in organ donation and transplantationThe impact of community: ACB Organ Health CommitteeLinks Learn more about living organ donation: www.livingorgandonation.caLiving Kidney & Liver Donation at UHN: UHN Ajmera Transplant CentreInformation Sessions for potential donors: givelifeuhn.eventbrite.ca  Becoming a living donor: https://www.uhn.ca/Transplant/Pages/become_living_donor.aspxACB Organ Health Committee & Green Table Talk: https://www.youtube.com/@acborganhealth  Black Health Alliance: https://blackhealthalliance.caKidney Foundation of Canada – Living Donation https://kidney.ca/Get-Involved/Be-a-Living-DonorTrillium Gift of Life Network – Organ Donation in Ontariohttps://www.giftoflife.on.caEach episode, we share patient stories about organ donation from transplant recipients and living donors, along with insights and education from leading medical experts. Whether you’re a patient, a caregiver, a donor, or simply curious about the world of organ transplantation, you’ll hear expert advice and inspiring journeys of hope, resilience, and second chances.About our HostCandice Coghlan is the Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre. She is also a board member for the National Kidney Foundation and a kidney transplant recipient. After she was diagnosed with kidney failure in her early 20s, she was on dialysis until receiving a transplant from her mother.Have questions? Comments? Ideas for an episode? Please reach out to the Centre for Living Organ Donation at [email protected]. Thanks for spending your time with us.The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network.