<description>&lt;p&gt;In this episode, Sarita is joined by Jenifer Waldrop, Executive Director of the Rare Disease Diversity Coalition (RDDC), to discuss the Inequities in the Rare Disease Community Report completed in partnership with the National Organization for Rare Disorders (NORD).&lt;/p&gt;&lt;p&gt;This research involved over 2,800 participants and sheds light on the barriers faced by underrepresented patients with rare diseases. &lt;/p&gt;&lt;p&gt;Tune in as we delve into this groundbreaking national survey, while offering critical insights into healthcare access challenges.&lt;/p&gt;&lt;p&gt;Learn more about RDDC and NORD:&lt;/p&gt;&lt;p&gt;RDDC at rarediseasediversity.org &lt;/p&gt;&lt;p&gt;NORD at rarediseases.org&lt;/p&gt;
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In this episode, Sarita is joined by Jenifer Waldrop, Executive Director of the Rare Disease Diversity Coalition (RDDC), to discuss the Inequities in the Rare Disease Community Report completed in partnership with the National Organization for Rare Disorders (NORD).This research involved over 2,800 participants and sheds light on the barriers faced by underrepresented patients with rare diseases. Tune in as we delve into this groundbreaking national survey, while offering critical insights into healthcare access challenges.Learn more about RDDC and NORD:RDDC at rarediseasediversity.org NORD at rarediseases.org

Being Rare Podcast

Ep 107. Health Equity Insights: Discussing the Inequities in the Rare Disease Community Report

Ep 107. Health Equity Insights: Discussing the Inequities in the Rare Disease Community Report

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