<p><strong>Join the Enabled Disabled Community: https://www.enabledchat.com</strong></p> <p><br></p> <p>In this episode, we are talking to Daniel DeFabio, who co-founded the Disorder Channel, the Rare Disease Film Festival, and also works as a community manager for Global Genes. Daniel and I discuss his background in designing games, creating media, and how the birth of his son Lucas, who was born with a rare disease called Menkes Disease, helped him and his wife figure out what really matters in their lives.&nbsp;</p> <p>Daniel's empathy, creativity, and openness shine in this episode. It's another terrific example of how the difficulties we experience around disability or disease is a both/and experience, filled with joy, difficulties, and moments that help you understand what gives life meaning and value.&nbsp;</p> <p>You can learn more about Daniel here:</p> <p><a href="">https://globalgenes.org/2022/04/22/tell-your-story-daniel-defabiorare-dad-filmmaker-advocate/</a></p> <p>&nbsp;</p>