<p>[This is a Rerelease. Episode first published on July 19, 2024.]Join us for a conversation with Jonathan Clark, a patient advocate who has been in remission for over five years after receiving CAR T-cell therapy for Mantle Cell Lymphoma. </p><p>Jonathan shares his journey from relapse to recovery, detailing the challenges and triumphs of this cutting-edge treatment from a patient’s perspective. With host Dr. Sarah de Vlieger, they discuss his motivation for sharing his story and the profound physical and psychological impacts of long-term remission. </p><p>Jonathan also talks about managing long-term side effects like immunodeficiencies and how apparently small changes can significantly improve quality of life. He emphasizes the importance of understanding the patient&#39;s perspective, advocating for quality of life improvements, and the need for personalized care that goes beyond medical statistics. Jonathan highlights the global disparities in accessing advanced treatments like CAR T-cell therapy and concludes with a call to prioritize quality of life in treatment decisions. </p><p> </p><p>Host: Dr Sarah de Vlieger</p><p>Guest: Jonathan Clark</p><p>This episode is part of a series recorded at the joint EHA-EBMT 6th European CAR T-cell meeting in Valencia in February 2024.</p><p>Learn More</p><p>Interested in more content related to CART? We&#39;ve got you covered. Check out free CART program on <a href="https://ehacampus.ehaweb.org/ilp/pages/description.jsf?menuId=1106&client=#/users/@self/catalogues/1700/programmes/303993/description">⁠EHA Campus⁠</a>.</p><p><br></p><p>What did you think of this podcast? Share your opinions with us in this short feedback survey.</p><p><a href="https://forms.monday.com/forms/d02e52896815eef59ecae09fb74dd78f?r=use1">⁠Provide Feedback⁠</a></p><p><br></p><p>Would you like to explore more eLearning or podcasts? Please visit the EHA Campus.</p><p><a href="https://ehacampus.ehaweb.org/">⁠https://ehaedu.org/Campus⁠</a></p><p><br></p><p>Subscribe, share, and review this podcast to be able to address topics you enjoy and like to listen to.</p><p>Follow EHA on Instagram: <a href="https://www.instagram.com/EHA_Hematology/?utm_medium=podcast&utm_source=bcast&utm_campaign=eha-unplugged">⁠https://www.instagram.com/EHA_Hematology/⁠</a></p><p>Facebook: <a href="https://e-h-a.link/facebook?utm_medium=podcast&utm_source=bcast&utm_campaign=eha-unplugged">⁠https://e-h-a.link/facebook⁠</a></p><p>LinkedIn: <a href="https://www.linkedin.com/company/eha/?utm_medium=podcast&utm_source=bcast&utm_campaign=eha-unplugged">⁠https://www.linkedin.com/company/eha/⁠</a></p><p>Email us: education@ehaweb.org</p><p>Subscribe to receive the EHA Educational Updates via <a href="https://eha.news/subscribe?utm_medium=podcast&utm_source=bcast&utm_campaign=eha-unplugged">⁠https://eha.news/subscribe⁠</a> </p><p></p>

EHA Unplugged

European Hematology Association

Life After CAR T-cell Therapy: Jonathan Clark’s Journey with Mantle Cell Lymphoma and the Future of Patient Advocacy

JAN 30, 202612 MIN
EHA Unplugged

Life After CAR T-cell Therapy: Jonathan Clark’s Journey with Mantle Cell Lymphoma and the Future of Patient Advocacy

JAN 30, 202612 MIN

Description

<p>[This is a Rerelease. Episode first published on July 19, 2024.]Join us for a conversation with Jonathan Clark, a patient advocate who has been in remission for over five years after receiving CAR T-cell therapy for Mantle Cell Lymphoma. </p><p>Jonathan shares his journey from relapse to recovery, detailing the challenges and triumphs of this cutting-edge treatment from a patient’s perspective. With host Dr. Sarah de Vlieger, they discuss his motivation for sharing his story and the profound physical and psychological impacts of long-term remission. </p><p>Jonathan also talks about managing long-term side effects like immunodeficiencies and how apparently small changes can significantly improve quality of life. He emphasizes the importance of understanding the patient&#39;s perspective, advocating for quality of life improvements, and the need for personalized care that goes beyond medical statistics. Jonathan highlights the global disparities in accessing advanced treatments like CAR T-cell therapy and concludes with a call to prioritize quality of life in treatment decisions. </p><p> </p><p>Host: Dr Sarah de Vlieger</p><p>Guest: Jonathan Clark</p><p>This episode is part of a series recorded at the joint EHA-EBMT 6th European CAR T-cell meeting in Valencia in February 2024.</p><p>Learn More</p><p>Interested in more content related to CART? We&#39;ve got you covered. Check out free CART program on <a href="https://ehacampus.ehaweb.org/ilp/pages/description.jsf?menuId=1106&client=#/users/@self/catalogues/1700/programmes/303993/description">⁠EHA Campus⁠</a>.</p><p><br></p><p>What did you think of this podcast? Share your opinions with us in this short feedback survey.</p><p><a href="https://forms.monday.com/forms/d02e52896815eef59ecae09fb74dd78f?r=use1">⁠Provide Feedback⁠</a></p><p><br></p><p>Would you like to explore more eLearning or podcasts? Please visit the EHA Campus.</p><p><a href="https://ehacampus.ehaweb.org/">⁠https://ehaedu.org/Campus⁠</a></p><p><br></p><p>Subscribe, share, and review this podcast to be able to address topics you enjoy and like to listen to.</p><p>Follow EHA on Instagram: <a href="https://www.instagram.com/EHA_Hematology/?utm_medium=podcast&utm_source=bcast&utm_campaign=eha-unplugged">⁠https://www.instagram.com/EHA_Hematology/⁠</a></p><p>Facebook: <a href="https://e-h-a.link/facebook?utm_medium=podcast&utm_source=bcast&utm_campaign=eha-unplugged">⁠https://e-h-a.link/facebook⁠</a></p><p>LinkedIn: <a href="https://www.linkedin.com/company/eha/?utm_medium=podcast&utm_source=bcast&utm_campaign=eha-unplugged">⁠https://www.linkedin.com/company/eha/⁠</a></p><p>Email us: [email protected]</p><p>Subscribe to receive the EHA Educational Updates via <a href="https://eha.news/subscribe?utm_medium=podcast&utm_source=bcast&utm_campaign=eha-unplugged">⁠https://eha.news/subscribe⁠</a> </p><p></p>