<p>When Jonathan Penner’s wife Stacy Title was diagnosed with ALS, their life changed with shocking speed. He joins Vanessa to talk about caregiving, survival, and the hard-won wisdom of staying present even when everything is getting worse. </p><p><br></p><p>Connect to resources through <a href="https://ccals.org/" target="_blank" rel="ugc noopener noreferrer">Compassionate Care ALS (CCALS)</a>. You can also read the Vulture article about Stacy’s fight to make one final movie: <a href="https://www.vulture.com/2019/05/stacy-title-director-walking-time-bomb.html" target="_blank" rel="ugc noopener noreferrer">Walking Time Bomb</a>.</p><p><br></p><p>To connect with the team, find us on ⁠<a href="https://www.instagram.com/soyourparentsareold?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==">Instagram⁠</a> and ⁠<a href="https://www.youtube.com/@SoYourParentsAreOld">Youtube⁠</a>, or shoot us an email at [email protected]. We want to hear from you! </p><p><br></p><p>Lily Houston Smith is our senior producer; music by Mark McAdam and Amber Devereux.</p>