#78 Sudden Vision Loss and Giant Cell Arteritis: When “Healthy” Changes Overnight
In this episode of It Happened To Me, we share a story that underscores how quickly life can change, even when everything seems perfectly healthy.
Our guest, Kathi Lopez, was a retired business owner who felt active, well, and thriving when she suddenly lost vision in one eye. What began as a frightening visual disturbance quickly escalated into a medical emergency and led to a diagnosis of Giant Cell Arteritis (GCA), a serious inflammatory condition that can cause permanent vision loss if not treated immediately. Kathi was also diagnosed with Polymyalgia Rheumatica (PMR), a related autoimmune disease that causes widespread pain, stiffness, and fatigue.
Kathi has permanently lost vision in her right eye, but she has not lost her voice. In this powerful conversation, she shares what it’s like to go from “healthy” to navigating chronic autoimmune illness, how quickly symptoms can be missed or dismissed, and why awareness of GCA can be life- and vision-saving.
This episode is an important reminder that listening to your body, and acting quickly, can make all the difference.
In This Episode, We Discuss:
The moment Kathi first noticed something was wrong with her vision
Early warning signs of Giant Cell Arteritis, including headaches, jaw pain, fatigue, and body aches
How rapidly GCA can progress from subtle symptoms to permanent vision loss
Receiving a life-altering diagnosis and processing irreversible vision loss
The emotional, psychological, and physical impact of losing sight in one eye
Adapting to monocular vision and changes in daily independence
Living with both Giant Cell Arteritis and Polymyalgia Rheumatica
Treatment approaches and how Kathi’s body responded
Where the healthcare system succeeds, and where it can fail patients with rare autoimmune diseases
Advice for newly diagnosed patients and what Kathi wishes providers understood
A message for anyone who believes, “This could never happen to me”
Resources Shared by Kathi
Kathi wanted to share the following practical, evidence-informed strategies for adapting to vision loss in one eye. These resources do not replace medical care but may help support rehabilitation and daily functioning.
Structured Low-Vision Rehabilitation
Work with a Certified Vision Rehabilitation Therapist (CVRT) or low-vision occupational therapist
Learn techniques for reading, mobility, depth perception, and hand-eye coordination
Eccentric viewing training may help maximize use of stronger retinal areas
Monocular Vision Therapy Exercises (Performed with the affected eye covered)
Monocular push-ups for focus and accommodation
Near-far focusing to improve visual flexibility
Brock string or Hart chart exercises for eye movement and coordination
Figure-8 eye tracing and directional eye glides
Adaptive Skills Training
Tossing and catching a ball to improve spatial judgment
Motion-parallax head movements to aid depth perception
Practicing scanning toward the blind side when walking or navigating spaces
Assistive Tools
Enhanced lighting, contrast markings, magnifiers, and large print
Electronic aids such as CCTVs or adaptive visual technology
Expectations & Consistency
Adaptation often takes 6–9 months
Daily practice (10–20 minutes per exercise) is most effective
Patience and self-compassion are essential
Important: Always consult your ophthalmologist or low-vision specialist before starting any new therapy, especially after GCA.
Connect With Us
Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.
“It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.
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