In this episode of the CdLS Connections Podcast, we sit down with Marci Dunning—mom to Freya and creator of Freya’s Lucky Arm—for an honest and heartfelt conversation about parenting, resilience, and showing up authentically. Marci shares her journey raising Freya, the power of confidence and advocacy, and what it means to live openly and unapologetically in the rare disease community. Her story is a reminder of the strength, love, and connection that brings families together.  This episode a...

CdLS Connections

Canadian CdLS Foundation

Ep.#17 đź’ś Family Series: Marci Dunning - Freya's Mother

MAR 31, 2026109 MIN
CdLS Connections

Ep.#17 đź’ś Family Series: Marci Dunning - Freya's Mother

MAR 31, 2026109 MIN

Description

In this episode of the CdLS Connections Podcast, we sit down with Marci Dunning—mom to Freya and creator of Freya’s Lucky Arm—for an honest and heartfelt conversation about parenting, resilience, and showing up authentically.Marci shares her journey raising Freya, the power of confidence and advocacy, and what it means to live openly and unapologetically in the rare disease community. Her story is a reminder of the strength, love, and connection that brings families together.This episode also available on YouTube: https://youtu.be/2xhz_t-zj0AFollow Marci & Freya: Instagram, TikTok & Facebook: @freyasluckyarmYouTube: Freya’s Lucky Arm#CdLS #RareDisease #ParentingJourney #Advocacy #FreyaLuckyArmSend us Fan MailSupport the showThanks for listening to CdLS Connections brought to you by the Canadian CdLS Foundation.Stay connected with our community at www.canadiancdlsfoundation.com and follow us on social media for more stories, support and updates. Together, we're building awareness and connection for everyone affected by Cornelia de Lange Syndrome.(c) Canadian CdLS Foundation. All Rights Reserved.