The Charles Bonnet Syndrome Podcast

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes Evelyn Lewis, who shares her inspiring story of living with Charles Bonnet Syndrome (CBS). Evelyn details her lifelong struggle with visual impairments, beginning with her congenital condition Aniridia and subsequent battles with cataracts, glaucoma, retinal detachment, and cornea transplants. Despite significant visual loss and hallucinations associated with CBS, Evelyn speaks about her proactive approach to mental health, seeking therapy, and finding comfort in her faith and community activities. She also discusses the importance of acknowledging and sharing one's experiences, seeking medical and emotional support, and staying engaged in life. Evelyn's narrative is a testament to resilience in the face of ongoing challenges.

Contact Evelyn at [email protected]

Contact me at [email protected]

For help with CBS call 1-704-389-0160

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected]

The Charles Bonnet Syndrome Podcast Merchandise

https://cbsyndromepodcast.com/merchandise

In this episode of the Charles Bonnet Syndrome Podcast, host Shaimond is joined by Dr. Marta Wnuczko, an experimental psychologist and professor at Humber Polytechnic. They discuss Dr. Wnuczko's research on how both sighted and blind individuals perceive and navigate their environments, and delve into the topic of hallucinations, including those experienced in Charles Bonnet Syndrome (CBS). Dr. Wnuczko shares her personal experiences with her great-grandmother, who exhibited symptoms of CBS, and provides insights into the nature of hallucinations, the importance of awareness, and coping strategies. The conversation also touches on her research methodologies, the balance between teaching and research, and the need to cultivate a curiosity-driven, positive approach to perception and human behavior.

Contact Dr. Marta at [email protected]

Contact me at [email protected]

For help with CBS call 1-704-389-0160

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes Shannon Glasgow, author of 'What They See, What We Know: Navigating Charles Bonnet Syndrome, Caregiving Without Losing Your Mind or Your Finances.' Shannon shares his profound journey as the caregiver for his mother, who suffers from Charles Bonnet Syndrome (CBS. He speaks about his transition from working overseas to dedicating his life to caregiving, the challenges he faced, and the emotional and financial impacts of his situation. Shannon also discusses the importance of awareness, support groups, and finding a balance between caregiving responsibilities and personal well-being. Tune in to learn more about Shannon's insightful experiences and his efforts to raise CBS awareness through his books and social media presence.

Contact Shannon at [email protected]

In this special 50th episode of the Charles Bonnet Syndrome podcast, host Shaimond celebrates the milestone with a panel of distinguished guests: Eva Potts from Mary Carmel's Light, Scott Muirden from the Charles Bonnet Syndrome Foundation in Australia, Duchess Antoinette McDonald-Ellis and her husband Ken Ellis. The discussion covers various updates and personal experiences related to Charles Bonnet Syndrome (CBS). Scott Muirden shares groundbreaking research from Australia, particularly the work of Vicki Hamilton at Griffith University focused on artistic representations of CBS experiences. Antoinette and Ken Ellis discuss their personal encounters with CBS and how art, music, and environment play roles in the manifestations of CBS. Eva Potts highlights the importance of awareness and the work being done by Mary Carmel's Light to support people with CBS. Additionally, Judith Potts from Esme's Umbrella in the UK provides a recorded message on new research findings, her ongoing projects, and the importance of educating the medical community about CBS, and Lucia Ricardo from Canada shares a congratulatory message regarding this podcast's 50th episode milestone. This episode underscores the global effort to raise awareness, the importance of combining art and science, and the crucial role of support groups in improving the quality of life for those living with CBS.

Mary Carmel's Light https://marycarmelslight.com/

Charles Bonnet Syndrome Foundation https://www.charlesbonnetsyndrome.org/

Contact me at [email protected]

For help with CBS call 1-704-389-0160