A Friend for the Long Haul: A Long Covid Podcast

Welcome to S04E10 of A Friend for the Long Haul - A Long Covid Podcast! I accidentally invented a virtual summer camp for Spoonies after having a small existential crisis in my Instagram stories.In this episode, I talk about why summer can feel surprisingly painful for chronically ill and neurodivergent people, especially parents, caregivers, and anyone grieving the life they thought they’d have. Between Long COVID, autism, ADHD, sensory overwhelm, heat intolerance, and the logistical nightmare of trying to “summer normally,” I realized what I actually need is community, ritual, silliness, softness, and something to look forward to.Enter: Camp Long Haul.A fully optional, low-pressure, asynchronous virtual camp for spoonie folks featuring themed weeks, crafts, scavenger hunts, campfire chats, hydration flotillas, ghost stories, pacing tips, and absolutely zero requirement to keep up or explain your absence.Lurkers welcome, goblin mode accepted, no assholes. Grab your flotilla and let's camp!Key topicsWhy summer can feel isolating and emotionally difficult for chronically ill and disabled peopleParenting in a fully neurodivergent household while managing chronic illnessCreating accessible community spaces for Spoonies and Long HaulersThe structure and philosophy behind Camp Long HaulLow-pressure participation and asynchronous community buildingThemed weeks, campfire chats, scavenger hunts, crafts, and low-spoon activitiesPacing, overstimulation, burnout, and adapting expectationsFriendship, belonging, ritual, and chosen family in disability communitiesCommunity rules around respect, consent, and psychological safetyReclaiming fun, softness, and creativity after trauma and illnessresourcesWhose Land — Whose LandInstagram account for Ray and Stormi (pet enrichment & disability-friendly dog training): Ray and Stormi Instagram and TikTok: Ray and Stormi TikTokEmbracing Enchantment — Embracing Enchantment PodcastSupport this PodcastI'm a disabled lady doing this whole podcast on my own. If you would like to support the podcast, please subscribe and follow, engage with my posts, comment, and share episodes that resonate with you! Those are the biggest ways you can support me and my work.If you'd like to get some of my merch, check out my Bonfire shop! All proceeds are funneled back into the podcast for tech or used for community care and mutual aid. I don't keep the proceeds.I do have an Amazon gift registry that I update for the summer each year. We are a blended family of 6 and all of us have disabilities. Some of our kids have complex medical issues as well as intellectual and physical disabilities, and we're increasingly neurodivergent. Summers get emotional, kids get boring, and the parents work from home without a "village" or the luxury of childcare. This summer gift registry keeps us afloat.---If you'd like to be a guest on the show or suggest a guest, please use this form! https://forms.gle/q9wiV6mQ4G3SMBu99Thank you for listening to and supporting A Friend for the Long Haul!KeywordsLong COVID, Spoonie community, chronic illness podcast, neurodivergent adults, autism, ADHD, virtual summer camp, disability community, accessible community, chronic illness support, CPTSD, pacing, burnout, neurodivergent parenting, accessible joy, online community, disability advocacy, mental health, summer loneliness, chronic illness isolation, low spoon activities, asynchronous community, virtual support group, EDS, chronic fatigue, inclusive spaces

Welcome to S04E09 of A Friend for the Long Haul - A Long Covid Podcast. This episode is part two of my catch-up chat with Megan Wages, my second-ever podcast guest, first wave Covid long hauler, co-owner of Fancy Free Nursery in Tampa, Florida, and the guest of last week's S04E08, Running a Small Business as a Covid Long Hauler with Megan Wages. In this episode, we talk about plants! I've become a plant lady in the last 6 years, and I've noticed that my plants tend to tell me a lot about how I'm feeling. First I noticed that the downstairs ones were fine. The upstairs ones were so sad. Turns out there's a reason for that. In Part 2 of this two-part episode, we get into the actual plant content. Specifically: what should a spoonie with limited energy, unpredictable symptoms, and a complicated relationship with energy actually grow?The answer is: more than you think. Megan walks through her spoonie-approved plant list, propagation tips, why your Calathea's attitude is not your fault, and the thing fluoride in tap water does to your spider plant. She also answers listener questions live, talks about soils, orchids in wine decanters, and the surprisingly emotional experience of a plant that keeps coming back no matter how badly you've neglected it.There's also a spider plant baby giveaway. Alysia won. She lives in a basement apartment and this is probably the perfect plant. I wish I had the spoons to get to the post office and send it to her. One day, my love!!! I promise!IN THIS EPISODE:Snake plants and ZZ plants: the spoonie ride-or-diesZZ Raven: the black plant for the goth baddiesPothos propagation and the hormone tip nobody talks aboutWhy I am a self-described prop lifterThe "teats" moment (you'll know it when you hear it)Ripsalis: if spaghetti became a plantSpider plants and the fluoride problemBurgundy rubber tree, Tineke, and the fiddle leaf fig blue sky tipOrchids in wine decanters: the lab aestheticAlocasia: pretty, finicky, spider mite magnetsWhy Walmart plants are a gamble (the fish department story)LECA: the water-to-soil bridge methodYour plant's health as a mirror for your mental healthListener questions answered Spider plant baby giveaway 🌱LISTENER QUESTIONS ANSWERED:Tara's 20-year fiddle leaf fig: how to help her thriveMonstera propagating in water: when and how to move to soilCan you bring an orchid back to life?Best plants for a low-light basement apartmentYou can find MeganFancy Free on InstaMegan on TikTokA Friend for the Long HaulA Friend for the Long Haul on Insta and TikTokSubstack: https://f4lh.substack.com/The podcast playlist on SpotifySupport this PodcastI'm a disabled lady doing this whole podcast on my own. If you would like to support the podcast, please subscribe and follow, engage with my posts, comment, and share episodes that resonate with you! Those are the biggest ways you can support me and my work.If you'd like to get some of my merch, check out my Bonfire shop! All proceeds are funneled back into the podcast for tech or used for community care and mutual aid. I don't keep the proceeds.I do have an Amazon gift registry that update for the summer each year. We are a blended family of 6 and all of us have disabilities. Some of our kids have complex medical issues as well as intellectual and physical disabilities, and we're increasingly neurodivergent. Summers get emotional, kids get boring, and the parents work from home without a "village" or the luxury of childcare. This summer gift registry keeps us afloat. ---If you'd like to be a guest on the show or suggest a guest, please use this form! https://forms.gle/q9wiV6mQ4G3SMBu99 Thank you for listening to and supporting A Friend for the Long Haul!

Welcome to S04E08 of A Friend for the Long Haul - A Long Covid Podcast! I'd like to share that this will be the first installment of a change to the podcast: shorter episodes! Longer recordings will be chunked into more digestible episodes, for all our spoons.Six years ago, my friend Megan bit into a raw onion to see if she could taste it. She couldn't, and that's how her long covid story starts. She was my second guest on this podcast, and in this segment, she's back to give us an update on how she's feeling and to talk about what it's like to run a small business with your spouse when you get sick. Megan is the co-owner of Fancy Free Nursery in Tampa, a first wave long hauler, and we discuss:Long covid friendshipsPerimenopauseGLP-1s (anecdotal! talk with your doctor! don't judge other people! don't compare yourself!)Running a plant shop and floral nursery during lockdownHow plants saved the shopBusiness collabsUsing and running social media when you're your only teamBranching out into silk floralsYou can find MeganFancy Free on InstaMegan on TikTokA Friend for the Long HaulA Friend for the Long Haul on Insta and TikTokSubstack: https://f4lh.substack.com/The podcast playlist on SpotifySupport this PodcastI'm a disabled lady doing this whole podcast on my own. If you would like to support the podcast, please subscribe and follow, engage with my posts, comment, and share episodes that resonate with you! Those are the biggest ways you can support me and my work.If you'd like to get some of my merch, check out my Bonfire shop! All proceeds are funneled back into the podcast for tech or used for community care and mutual aid. I don't keep the proceeds.I do have an Amazon wishlist that I add everything I need or randomly like to and you can 100% track my state of mind, hyperfixations, and fears looking at it. ---If you'd like to be a guest on the show or suggest a guest, please use this form!Thank you for listening to A Friend for the Long Haul!

Welcome to season 4 episode 7 of A Friend for the Long Haul - A Long Covid Podcast! What can tarot have to do with rebuilding your sense of self after chronic illness? More than you might think.I sat down with Megan Hamilton, a professional tarot reader, speaking coach, musician, and host of the Embracing Enchantment podcast, for a conversation about identity loss, the grief of realizing you can't go back to who you were, and why the safety we thought we had was maybe never quite real to begin with.Megan introduced me to a concept called self-efficacy, which is the idea that keeping the promises you make to yourself, even tiny ones, builds the kind of trust with yourself that actually sticks. We talked about why celebrating a small win is genuinely neurological rewiring, not toxic positivity. And somehow we ended up at a very personal confession about how long I sometimes wait to go to the bathroom.We also got into tarot as a tool for accessing truth you can't reach through thinking alone, why ritual doesn't have to be elaborate to be meaningful, and what it actually looks like to find magic inside a life that's been turned upside down.Megan is one of those people who makes you feel immediately at ease and then quietly rearranges how you see things before you've realized it's happened. This one is for anyone who is learning, slowly and imperfectly, to treat themselves like someone worth taking care of.Find Megan's podcast information at embracingenchantment.com and follow Embracing Enchantment wherever you get your podcasts. If you'd like to book a reading with Megan, or work with her as a coach, check out https://www.impactwitch.com/ Resources & mentions in this episode:Mundane Magic by Molly Donlan (Megan mentions "pub day" for this new book. We recorded this a few months ago and I've been delayed in releasing new episodes because of my TBI symptoms.) Self-efficacy: concept introduced by psychologist Albert BanduraConnect with A Friend for the Long Haul:Email: [email protected] Haul Line: 720-432-9368Substack: f4lh.substack.comMerch: Bonfire shopAmazon storefrontAnd on Instagram at both https://www.instagram.com/impactwitch and https://www.instagram.com/embracingenchantmentpod This show is just me. One AuDHD, queer, disabled lady with multiple chronic illnesses and one very mildly decent mic. I do everything you just watched with no team, no network, and no budget, which is either impressive or unhinged. Possibly both. If this episode meant something to you, I'd appreciate your kind support by sharing it with someone who would also enjoy it. You can also leave a review wherever you're listening, spoons permitting. It genuinely changes what this little show can do. There's also merch and a chaotic Amazon wishlist that help loads if you want to support that way. Okay. That's it. Low budget, high love, always. I'll see you next time.Connect with Beth:Email: [email protected] Haul Line: 720-432-9368Substack: f4lh.substack.comMerch: https://www.bonfire.com/store/a-friend-for-the-long-haul/My Amazon WishlistVenmo: @afriend4thelonghaul

Welcome to season 4, episode 6 of A Friend for the Long Haul - A Long Covid Podcast! One of my very favorite people is back on the pod: Amaranthia Sepia, co-founder of Sista Creatives Rising, commissioned seed packet artist for Sista Seeds, and now digital media manager for the disability and design podcast Down to the Struts. Amaranthia is a 26-year-old Black, disabled, neurodivergent artist and organizer based in New Hampshire, and in this conversation we get to really dig into her story, not only as a creative behind Sista Creatives Rising, but as an artist whose work is rooted in her family's gardening history, her love of Black women and the land, and her own hard-won journey toward self-preservation and community.We talk about her stunning seed packet illustrations for Sistah Seeds, founded by Amirah Mitchell. From the website: "In 2021, Amirah founded Sistah Seeds to connect black and brown growers to our culturally-important seeds. Sistah Seeds is one of a small but growing number of black-owned seed businesses in the U.S., changing the landscape of the seed industry. Together, we are part of a multi-ethnic, multi-national movement of farmers and seed-keepers, working to preserve our heritage and create a strong agricultural future for our communities."We also talk about hydroponics, healing, and how growing food for her mom during a health crisis sparked something lasting. We talk about Amaranthia's new role at Down to the Struts, how an unexpected $3,000 Social Security notice lit a fire under her to pursue additional work, and why remote, disability-justice-rooted employment is the difference between thriving and burning out.We also discuss what it's meant to find a vibrant disabled community online after years of navigating bullying, racism, misogynoir, and ableism...including the assumption that being homebound automatically means your life is sad and small. (Spoiler: it absolutely does not.)We also talk about Lilette, the tiny blue masking frog who has become the mascot of Sista Creatives Rising and might just end up in a children's book. No promises. But also maybe.Links mentioned in this episode:Sistah Creatives Rising: sistahcreativesrising.comSista Seeds: sistahseeds.comDown to the Struts (podcast on disability & design): downtothestruts.com Sista Creatives Rising on Instagram (for Lilette merch & links)The Sistas Uprising Fund micro grantsMentioned or featured in this episode:Katrina Dreamer (my pacing buddy, ep. 1, season 2 & season 3)Lissy Donovan (long hauler and business owner, ep. 9, season 3)📞 The Long Haul Line: 720-432-9368! Call or text to share a story, suggest a guest, or just say hi!📧 Email: [email protected]📬 Substack: f4lh.substack.comI'm also on Instagram.A Friend for the Long Haul is a low budget/high love production made by a disabled one-woman operation. If it means something to you, share it with someone whose earballs need it. Thank you!You can support this podcast by checking out:My online shop full of long covid merch (tees, bags, etc)Sending me something useful from my Amazon gift listSharing episodes, reels, and my unhinged memesThank you!