The Invisible Wave Podcast

For all there is to say about the incoming presidential administration, and there's plenty, one thing that surprised us was to see chronic illness mentioned front and center in all the Health picks. Santi enlists Dr. Kavita Patel, Obama admin veteran, DC insider and MSNBC contributor, to make sense of it all, and help gauge if there's any cause for optimism for the IW movement.

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Father and son doctors Hank and Reid Chambers take us through the experience of being father and sibling to a young person with cerebral palsy, and how that lived experience, and their perspective as men in their families, has informed their relationships with each other and with the families of their patients. And in keeping with our grass-roots solutions theme, Hank shares how his experience as a father and doctor also inspired him to create a clinic model at his hospital in San Diego that we feel is a gold standard for care for this population and their families.

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Building on our higher ed theme, the Invisible Wave Ambassadors join Santi to illuminate the unique unseen challenges they have personally faced in college and grad school, causing them to struggle, fall behind, and even drop out. And they share simple, attainable ideas for the kinds of support that would have made all the difference for them, and the millions like them, which we need to implement nationwide to stop the hemorrhage of talent from our schools.

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Parents of young adults with chronic health conditions are presented with a unique dilemma - how to let go of their protective instincts and encourage autonomy and independence in their children as they move into adulthood, when faced with serious, even life-threatening health care realities. Santi sits down with renowned pediatric psychologist and family systems expert Rudy Bauer on steps parents and their children can take to better understand and navigate these profound and rarely discussed dynamics.

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Guests Wendy and Miller Steel take us through the experience of being parents to a young adult with a chronic condition, with themes that will be familiar to listeners of the Invisible Wave Podcast - years of misdiagnosis, gaslighting, suffering and sacrifice - but also with some bright notes on the power of a few well chosen words from a trusted ally, and of listening.

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https://www.youngadultswithepilepsy.org/peer-support-group