The CF Together Podcast

This podcast is a re-release and first published on 31/01/2024 for the CF Strong Project. Have you ever wondered how to balance a social life while living with cystic fibrosis (CF)? You are not alone. Hosted by Bradley Dryburgh, who lives with CF, delves into the perspectives of six young adults facing similar challenges. In this opening episode, Adam, Blake, Caitlin, Ellie, Sam, and Tayla share candid accounts of how they navigate a social life while managing their CF. From Adam's seamless integration of CF into friendships to Tayla's candid admission of hermit tendencies, each story offers a unique perspective into the delicate balance between health and social life, as a young person living with CF. The views, experiences or comments shared in these stories are not medical advice and may not reflect opinions or beliefs of CF Together. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health. If you need any support, contact the National CF Support Line on 1300 CF HELP (23 4357). The CF Strong Project through CF Together received funding from the Australian Government Department of Health, Disability and Ageing.

Corey, a young actor living with CF, shares his story together with his mother, Melissa. This beautifully raw conversation explores how one family has navigated cystic fibrosis and the profound impact of living with and loving someone with CF. Their story is one of resilience, hope and the unbreakable bond between a mother and son. The views, experiences and comments shared in these stories are not medical advice and may not reflect the opinions or beliefs of CF Together. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health. If you need support, contact the National CF Support Line on 1300 CF HELP (23 4357) or follow the link below to access resources.

In this episode of Stronger Together, Kelly Exner, Clinical Services Manager, is joined by Adam Holmes from Community and Professor Keith Ooi for an insightful conversation about what it means to live a meaningful and fulfilling life while living with cystic fibrosis (CF). Together, they explore the challenges and opportunities that come with CF, the importance of connection, purpose and wellbeing, and how people can build rich, rewarding lives while managing the realities of a chronic condition. Whether you are living with CF, supporting someone who is, or interested in learning more about the lived experience of CF, this episode offers valuable perspectives, practical insights and inspiring stories from those dedicated to improving outcomes for the CF community. Listen now and join the conversation on living well with CF. ???? #StrongerTogetherPodcast #CysticFibrosis #LivingWithCF #CFCommunity #CFTogether #MeaningfulLife #Wellbeing #HealthAndWellbeing #ChronicIllness #PatientVoice #CommunitySupport #LifeWithCF #CFAwareness #Podcast #Healthcare #SupportAndConnection #LivingWell #CFCare #HealthPodcast #StrongerTogether

This episode of the CF Together podcast is a special re-release, originally published on 13 February 2021 as part of the CF Strong iniatitive. Host Keegan Bakker, former radio presenter and now CEO of Audata sits down with Peter Oxford, producer of Showcase (the Australian Dance Championships) and cabin crew member for Virgin Australia. Peter shares his experience of growing up living with cystic fibrosis (CF) and building a dynamic career in the dance industry. From running his own studio to travelling the world, his story reflects resilience, determination, and a commitment to inspiring young people including people living with CF.

In this episode of the Stronger Together series, Dr Keith and Adam are joined by Tamarah Katz, Senior Respiratory Dietitian at Sydney Children’s Hospital and researcher at the University of New South Wales. With over 15 years’ experience working alongside families of children living with cystic fibrosis, Tamarah shares her insights into how nutrition in CF care is evolving. From the traditional “legacy” CF diet to the impact of CFTR modulators, she explores why it’s time to rethink how we approach food, health, and long-term wellbeing. Tamarah also discusses her groundbreaking research focused on improving diet quality in children with CF, including developing new nutritional guidelines, understanding family perspectives, and co-designing practical, real-world dietary strategies. This episode offers valuable guidance for parents, carers, and the broader CF community, while highlighting the future of nutrition in CF care and its role in supporting healthier lives. Tamarah Katz latest research Consensus-based guidance for the nutritional management of children with cystic fibrosis on ELEXACAFTOR/TEZACAFTOR/IVACAFTOR - PubMed