Episode 095 - Utilize But Verify - AI in the Rare Disease Journey w/ Dr. Michael Henry

Welcome to Episode 095 of the Beyond the Diagnosis Podcast. Artificial intelligence is changing the way we find, understand, and use medical information—but what does that mean for people living with rare disease? In this episode, Kathy talks with Dr. Michael Henry about the role AI can play in the rare disease journey, from helping patients make sense of complex information and prepare for conversations with their healthcare providers to navigating the uncertainty of a diagnostic odyssey. They also explore an important question: How do we use AI without allowing it to replace the expertise, experience, and relationship at the heart of good medical care? This isn't about blindly trusting AI—or dismissing it. It's about learning how to question, verify, and use this rapidly evolving technology thoughtfully as another tool in the rare disease toolbox.  Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected].    Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!    Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.    Resources mentioned in the podcast:  Get more info on Histiocytosis Awareness Month: www.histio.org/getinvolved/raiseawareness  Get involved in our Blue Ribbon Run! www.histio.org/blueribbonrun  Follow the Histiocytosis Association on social media:  Facebook: https://www.facebook.com/histio  Twitter: @histiocytosis  Instagram: histiocytosis_association  YouTube: https://www.youtube.com/@Histiocytosis    Music: “Heroes” by Noah Smith