/https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/38482345/38482345-1692893026171-b9d9f23e444f.jpg)
GlycoCast, a journey of families, sugars and rare disorders
Ivan Martinez Duncker
CDGCare: a story of family, advocacy and awareness
MAY 4, 202443 MIN
/https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_episode/38482345/38482345-1714790656849-e4c95621a7f15.jpg)
Description
Join Karen Morici and Dr. Ivan Martinez Duncker in this interview with Andrea Miller, Founder and President of the non-profit organization CDGCare, a wonderful network that has been shaping the CDG family community into an evolving entity that has greatly helped the life of hundreds of families with children affected by rare disorders called CDG (Congenital Disorders of Glycosylation)
For more information: https://cdgcare.org/

