Episode 19: Having a child with a muscle wasting condition on a ventilator

Our latest Muscles Matter podcast episode focuses on the experience of having a child living with a muscle wasting condition who might require the use of a ventilator. Guest Kasey, mother of two-year-old Chester, who lives with SMA type 1, shares her own experiences along with our host Becca, who also lives with SMA, and uses a ventilator at night.  They discuss the day-to-day practicalities, dealing with anxieties and preconceptions, and share tips and advice.