The PaedsHub Pod

In this episode Dr Lorna Hack speaks to Dr Priyank Rajan, a clinical fellow working in Oncology & Haematology, about the lived experience of a cancer diagnosis. Resources discussed: -Under 16s cancer experiencesurvey (https://under16cancerexperiencesurvey.co.uk/visual-summaries) - Patient and parent perspectives on paediatric cancer multidisciplinary team working and national advisory panels in the UK: a qualitative research study (https://adc.bmj.com/content/109/4/321) Charities: -Teenage Cancer Trust -Young Lives vs Cancer Dr Rajan’s book recommendations: ‘The Emperor of All Maladies’ by Siddhartha Mukherjee and ‘The Surrender Experiment’ by Michael Singer. Please let us know your thoughts. Your feedback will help us keep the podcast relevant to you. Perhaps you’d like to suggest an article for a future episode? If you are interested in contributing leave us a comment!

In this episode, Dr Felicity Cooksey speaks to Dr Kate McCann about adverse childhood experiences. Dr Kate McCann is a community child health consultant and member of the Trauma Informed Strategy Group in Somerset. We discuss how adverse childhood experiences may impact a child’s development and the importance of recognising and responding to childhood trauma. Recommended Resources: TED Talks • Dr Nadine Burke Harris – TED talk: How childhood trauma affects health across a lifetime. • Molly Wright- TED talk: How Every Child Can Thrive by Five Articles • Felitti VJ, Anda RF, Nordenberg D, Williamson DF, Spitz AM, Edwards V, Koss MP, Marks JS. Relationship of childhood abuse and household dysfunction to many of the leading causes of death in adults. The Adverse Childhood Experiences (ACE) Study. Am J Prev Med. 1998 May;14(4):245-58. • Nelson CA, Scott RD, Bhutta ZA, Harris NB, Danese A, Samara M. Adversity in childhood is linked to mental and physical health throughout life. BMJ. 2020 Oct 28;371:m3048. Books • The Body Keeps the Score by Bessel van der Kolk • The Deepest Well by Dr Nadine Burke Harris • Goodnight Mister Tom by Michelle Magorian • The Secret Garden by Frances Hodgson Burnet Websites • The Bucharest Early Intervention Project. Available at https://www.bucharestearlyinterventionproject.org/ • Center on the Developing Child at Harvard University https://developingchild.harvard.edu/ • EHCAP- Mindful Emotion Coaching https://mindfulemotioncoaching.co.uk/ • UK trauma council https://uktraumacouncil.org/ • Oxford Brain Story https://www.oxfordbrainstory.org/

This episode, the Paedshub Pod team got together for our annual roundup. Felicity Cooksey, Leila Ellis, Lorna Hack and Paulina Connolly discuss 12 articles that we enjoyed over the past year from ADC. Happy New Year! Articles & related resources: 1. Barriers to initiating and implementing palliative and end of life care for children with life-limiting conditions- A mixed methods study in a UK Children’s Hospital. https://adc.bmj.com/content/107/Suppl_2/A299.1 2. Pharmacokinetic and pharmacodynamic data from the NEOLEV1 and NEOLEV2 studies. https://adc.bmj.com/content/109/10/854 3. Family poverty, neighbourhood greenspace and perinatal outcomes. https://adc.bmj.com/content/109/12/1017 4. Near-fatal and fatal asthma and air pollution: are we missing an opportunity to ask key questions? https://adc.bmj.com/content/109/8/616 5. Fifteen-minute consultation: The prepubescent gender-diverse child: how to answer parents’ questions. https://ep.bmj.com/content/109/3/106 Additional resources: https://cass.independent-review.uk/home/publications/final-report/ 6. Children born to subfertile couples, how are they doing? Evidence from research. https://adc.bmj.com/content/early/2024/04/07/archdischild-2023-326023 7. Delivery room dextrose gel for preterm hypoglycaemia (the GEHPPI study): a randomised placebo-controlled trial. https://fn.bmj.com/content/early/2024/11/17/archdischild-2024-327313 8. Fifteen-minute consultation: Group A streptococcal pharyngitis, diagnosis and treatment in children. https://ep.bmj.com/content/109/5/210 Additional resources: FeverPAIN score: https://www.mdcalc.com/calc/3316/feverpain-score-strep-pharyngitis#evidence 9. Nasogastric tube feeding under physical restraint of children and young people with mental disorders: a comprehensive audit and case series across paediatric wards in England. https://adc.bmj.com/content/109/8/649 10. Recognition, prevention and management of ‘digital harm’. https://ep.bmj.com/content/109/3/120 Additional resources: https://www.ceopeducation.co.uk/ https://www.childline.org.uk/info-advice/bullying-abuse-safety/online-mobile-safety/report-remove/?gclsrc=aw.ds&gad_source=1&gclsrc=ds https://www.parentalminds.org.uk/wp-content/uploads/2023/12/LMHS-Thrive-Directory-181223.pdf https://learninghub.nhs.uk/Catalogue/Internet-safety-suicide-self-harm https://mindedforfamilies.org.uk/Content/parenting_in_a_digital_world/#/id/5e30acc07c501d4bd0554ad5 https://www.nspcc.org.uk/keeping-children-safe/online-safety/ https://www.childrenscommissioner.gov.uk/digital/5-a-day/ https://uniquevoice.org/online-safety/ 11. Achieved oxygen saturations and risk for bronchopulmonary dysplasia with pulmonary hypertension in preterm infants. https://adc.bmj.com/content/109/11/941 12. Fifteen-minute consultation: Empowering children, young people and families through shared decision-making: a practical guide. https://ep.bmj.com/content/109/6/264 Our entertainment recommendations: Books: Midnight's children by Salman Rushdie The Salt Path by Raynor Winn Lessons in Chemistry by Bonnie Garmus Comic: The Weight of Expectation ⁠https://actwithlove.co.uk/woe⁠ Films & Series: Squid Games (Netflix) Film: The Green Book (2018)

In this episode Dr Lorna Hack speaks to Dr Anirban Majumdar about Spinal Muscular Atrophy, and the remarkable advances made in managing this condition in the twenty-first century. Dr Majumdar is a Consultant Paediatric Neurologist at the Bristol Royal Hospital for Children, and delivers the regional Neuromuscular Service. We discuss: the genetic basis of SMA, the targets of disease modifying treatments, the pros and cons that guide treatment choice, and monitoring of treatment efficacy. Article: https://adc.bmj.com/content/108/Suppl_2/A199 Dr Majumdar’s book recommendations: ‘Yellowface’ by R. F. Kuang and ‘The Spanish Civil War’ by Antony Beevor.

In this episode, Dr Felicity Cooksey talks with Dr Marie Monaghan about idiopathic intracranial hypertension. Dr Monaghan is a general paediatric consultant with a specialist interest in epilepsy, based at Bristol Royal Hospital for Children. She co-authored a paper titled ‘Consensus recommendations for the assessment and management of idiopathic intracranial hypertension in children and young people’, which was published in Archives of Disease in Childhood. Dr Monaghan discusses her experiences of working abroad, why cases of idiopathic intracranial hypertension are predicted to rise and how to approach a suspected case. Link to the full article: ⁠Consensus recommendations for the assessment and management of idiopathic intracranial hypertension in children and young people | Archives of Disease in Childhood (bmj.com)⁠