Episode: 55 - A Terminal Prognosis Sparks A New Model For Neurology Clinical Research

In this month’s episode of the Scope of Things, we share an episode of a sister podcast, Breaking Health. Breaking Health host Michelle Snyder traces Sandra Abravaya’s path from the Obama White House to building Synapticure after her husband Brian’s ALS diagnosis reshapes their family’s life overnight. The two connect the access crisis in neurology to a bigger clinical research problem and lay out how virtual specialty care plus longitudinal data can improve outcomes and raise the success rate of targeted trials.   • Brian and Sandra’s personal ALS diagnosis story and why it becomes a mission • Building I AM ALS and driving funding, legislation, and FDA regulatory reform • Synapticure’s “care and cures” model and how virtual neurology works • The value of longitudinal datasets for smarter clinical trial design and control groups • Mythbusting virtual dementia diagnosis, virtual care complexity, and the true scope of the access gap LINKS  Scope of Things Links https://www.clinicalresearchnewsonline.com/ https://www.scopesummit.com/ https://twitter.com/chi_healthtech https://www.linkedin.com/company/cambridge-healthtech-institute/ https://www.linkedin.com/company/clinical-informatics-news/  Host Links Michelle Snyder / McKesson Ventures: https://ventures.mckesson.com/ Michelle Snyder: https://www.linkedin.com/in/michellensnyder  McKesson Ventures: https://www.linkedin.com/company/mckesson-ventures/  Guest Links Synapticure Sandra Abrevaya: https://www.linkedin.com/in/sandra-abrevaya-26075640  Synapticure: https://www.linkedin.com/company/71207928/admin/dashboard/   @synpaticure: https://x.com/synapticure  The Scope of Things podcast explores clinical research and its possibilities, promise, and pitfalls. Clinical Research News senior writer, Deborah Borfitz, welcomes guests who are visionaries closest to the topics, but who can still see past their piece of the puzzle. Focusing on game-changing trends and out-of-the-box operational approaches in the clinical research field, the Scope of Things podcast is your no-nonsense, insider’s look at clinical research today.