残言片语Disabled Talks

本期节目文字稿 【聊了什么 The What】 本期节目围绕科技与残障展开讨论，从电子导盲犬、电子盲杖、手语翻译手套，到助听器和高科技假肢，我们一起聊了一个看似简单、其实非常复杂的问题：什么才是真正好的“科技助残”？ 科技并不天然意味着进步。有些产品看起来充满未来感，却可能忽视残障者真实的生活经验和需求，甚至试图用技术去“解决”本不需要被解决的问题。我们讨论了为什么一些备受关注的科技产品会遭到残障社群的反对，也分享了真正能够改善残障者生活、具有生命力的技术应该具备什么特点。同时，我们也从助听器和假肢出发，聊到不同残障群体对于“治疗”“康复”和科技的不同态度，以及昂贵的高科技产品是否可能再次强化“残障是个人身体问题”这一陈旧观念。 这不仅是一期关于科技的讨论，也是一次从残障者视角重新思考：我们究竟需要什么样的创新，以及谁应该参与定义“进步”。 In this episode, we explore the relationship between technology and disability. From electronic guide dogs, smart canes, and sign-language-translating gloves to hearing aids and high-tech prosthetics, we ask a seemingly simple but surprisingly complex question: What does genuinely good assistive technology look like? Technology does not automatically mean progress. Some products may appear innovative and futuristic while overlooking disabled people’s actual experiences and needs—or even trying to “solve” things that disabled people do not see as problems in the first place. We discuss why certain highly publicized technologies have faced criticism from disability communities and what makes technology genuinely useful and sustainable. Through examples such as hearing aids and prosthetics, we also explore how attitudes toward technology, treatment, and rehabilitation vary across disability communities, and whether expensive high-tech solutions can reinforce the outdated idea that disability is primarily an individual problem. 【本期嘉宾 Episode Guests】 孔铭：盲人，导盲犬使用者，音乐家 仁慈：假肢使用者，残障研究者，过气网红 八如：INFJ听人，艺术家，美国聋校教师 Kong Ming: Blind musician, guide dog handler, and Ph.D. student. Mercy: Prosthetic user, disability studies researcher, and "former internet influencer." Baru: INFJ, hearing ally, artist, and Teacher of the Deaf and Hard of Hearing 【时间轴 The When】 01:11 电子导盲犬与电子盲杖的风险与局限 07:24 为什么可以翻译手语的手套遭到了反对？ 13:40 真正好的科技是如何改善残障者生活的？ 19:00 具有生命力的科技产品应该是什么样的？ 28:00 离谱的“科技助残”是什么样的？ 32:00 助听器并不能解决“聋”，后续治疗至关重要 39:00 不同残障类别的人对“治疗”和科技的态度大不相同 46:35 高科技的假肢如何为肢体障碍者赋能 50:35 昂贵的科技是否会增强陈旧的残障是个人问题观念呢？ 01:11 Risks and Limitations of Electronic Guide Dogs and Smart Canes 07:24 Why Have Sign-Language-Translating Gloves Faced Backlash? 13:40 How Can Good Technology Truly Improve the Lives of Disabled People? 19:00 What Makes an Assistive Technology Product Truly Sustainable and Enduring? 28:00 What Does Absurd “Tech for Disability” Look Like? 32:00 Hearing Aids Cannot “Fix” Deafness: Why Follow-Up Care Is Crucial 39:00 How Attitudes Toward “Treatment” and Technology Differ Across Disability Groups 46:35 How High-Tech Prosthetics Can Empower People with Limb Disabilities 50:35 Does Expensive Technology Reinforce the Outdated Idea That Disability Is an Individual Problem? 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： 海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: [email protected]

本期节目文字稿 【聊了什么 The What】 七月是“残障骄傲月”（Disability Pride Month）。在这个源于西方的概念里，有人找到了破除羞耻感的解药，也有人看到了它的阶层局限与视觉中心主义的盲区。本期节目，仁慈和八如邀请到了听众们超级喜欢的大程子和孔铭，从中文语境下的“骄傲与自豪”辨析，聊到公共游行的包容性反思，再到个人努力与系统变革的拉扯。如果生活已经很难了，我们到底在"骄傲"什么？“骄傲”是一种特权，还是一种重新定义自我的力量？我们欢迎你加入这场关于身体、身份认同与社会系统的坦诚对话。 July is Disability Pride Month. Born out of a Western context, this concept has become, for some, an antidote to internalized shame — while for others, it exposes real blind spots around class privilege and visually centric culture. In this episode, Renci and Baru are joined by two guests our listeners love — Da Cheng Zi and Kong Ming — for a conversation that moves from unpacking "pride" versus "self respect" in the Chinese language, to reflections on how inclusive (or not) public parades really are, to the tension between individual effort and systemic change. If life is already hard enough, what exactly are we being "proud" of? Is pride a privilege, or a way of redefining ourselves on our own terms? Join us for this honest conversation about the body, identity, and the systems we live within. 【本期嘉宾 This episode's guests】 大程子：轮椅使用者，UBC硕士在读，自媒体创作者。 孔铭：盲人，导盲犬使用者，音乐家 仁慈：假肢使用者，残障研究者，过气网红 八如：INFJ听人，艺术家，美国聋校教师 Da Cheng Zi: Wheelchair user, M.A. student at the University of British Columbia, and disability content creator. Kong Ming: Blind musician, guide dog handler, and Ph.D. student. Mercy: Prosthetic user, disability studies researcher, and "former internet influencer." Baru: INFJ, hearing ally, artist, and Teacher of the Deaf and Hard of Hearing 【时间轴 The When】 00:00:00 我们到底在为什么而骄傲？ 00:06:35 "残障骄傲"是不是美国人的概念？ 00:11:20 从羞耻到坦然：环境真的会改变一个人 00:18:20 连残障游行，也可能排斥残障者？ 00:24:45 为什么轮椅花车让大程子哭了？ 00:29:45 Pride，到底该翻译成"骄傲"还是"自豪"？ 00:34:50 我不是为残障骄傲，而是为活下来骄傲。 00:46:00 "残障骄傲"会不会也是一种特权？ 00:53:30 一个老师的一句话，可能改变孩子的一生。 01:03:30 当我们谈个人努力时，别忘了系统责任。 00:00:00 What are we actually proud of? 00:06:35 Is "Disability Pride" an American concept? 00:11:20 From shame to self-acceptance: Can environment change a person? 00:18:20 Can a Disability Pride parade exclude disabled people? 00:24:45 Why did a wheelchair parade make Dachengzi cry? 00:29:45 Should Pride be translated as pride or self-respect in Chinese? 00:34:50 I'm not proud of my disability. I'm proud that I survived. 00:46:00 Is "Disability Pride" also a form of privilege? 00:53:30 How one teacher's words can change a child's life. 01:03:30 When we celebrate personal resilience, let's not forget systemic responsibility. 【一起来读书吧 Bookclub】 《残言片语》的姐妹播客《疲惫娇娃》最近会举办一个在纽约的读书会活动，感兴趣的朋友欢迎报名参加！ 《台湾漫游录》线下读书会： 8月9日，我们会在纽约中文独立书店Accent Sisters举办《台湾漫游录》线下读书会。故事讲述了1938年日本统治台湾时期，一位年轻的日本女性小说家来到岛上，希望能一路吃穿台湾，在这个过程中她爱上了自己的女性翻译，但却苦于难以克服殖民者与被殖民者之间的鸿沟。这本书今年斩获了国际布克奖，是首部获得这部奖项的华语原著作品。 读书会链接：https://luma.com/yayseynm 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： 海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: [email protected]

本期节目文字稿 【聊了什么 The What】 你可能看过手语，但未必看过真正的手语剧场。很多人以为，手语只是给聋人"翻译"用的。但事实上，它也可以是一种完整的艺术语言。甚至，一部经典戏剧，因为加入手语，能够拥有完全不同的生命力。这一期《残言片语》，八如邀请长期研究聋人文化与表演艺术的静静，一起聊聊一个很少被讨论，却足以颠覆我们对戏剧和语言想象的话题: 手语剧场。我们从纽约实地探访美国聋人剧团聊起，走进美国国家聋人剧院的发展历程，也走进美国西部聋人剧院（Deaf West Theatre）的创新实践；从百老汇手语音乐剧，到国内《纸鹤》《鸟的故事》等作品，一起看看手语如何成为一种真正的艺术表达，而不仅仅是无障碍。 如果你对手语、戏剧、残障文化、教育、无障碍设计感兴趣，或者只是想看看这个世界还有哪些不同的表达方式，希望这一期能带给你一些新的启发。因为有时候，真正改变我们的，并不是一种新的语言，而是一种新的观看方式。 You may have seen sign language before, but you probably haven't seen true sign language theatre. Many people assume sign language is only used to "interpret" for Deaf people. In fact, it can be a complete artistic language. Once sign language is woven into the classic play, it can take on an entirely different life. In this episode of Disabled Talks (残言片语), Baru invites Jingjing, a long-time researcher of Deaf culture and performing arts, to discuss a topic rarely talked about yet capable of overturning our assumptions about theatre and language: sign language theatre. We start with a visit to a Deaf theatre company in New York, trace the rise and development of the National Theatre of the Deaf, and look at the innovative practices of Deaf West Theatre. From Broadway sign language musicals to domestic works like Paper Crane and The Story of the Bird, we explore how sign language can become a genuine form of artistic expression, not just a matter of accessibility. If you're interested in sign language, theatre, disability culture, education, or accessible design — or simply curious about other ways of expressing the world- we hope this episode offers some new inspiration. Because sometimes, what truly changes us isn't a new language, but a new way of seeing. 【本期嘉宾 This episode's guests】 静静：表演研究学者，长期关注聋人文化、手语剧场与公共艺术教育。 八如：INFJ聋校老师，无障碍艺术倡导 Jingjing: Performance studies scholar with a long-standing focus on Deaf culture, sign language theatre, and public arts education. Baru: an INFJ Teacher of the Deaf; Advocate for accessible art. 【时间轴 The When】 00:10 节目开场｜为什么想聊手语剧场？ 03:05 什么是手语剧场？它和聋人剧场有什么区别？ 08:42 美国国家聋人剧院的兴衰：我们在纽约看到的最新现状 12:31 Deaf West Theatre：一种更灵活、更可持续的聋人剧团模式 16:20 中国的手语剧场发展：《纸鹤》《鸟的故事》等实践 20:54 聋人剧场、身份认同与手语作为艺术语言 24:15 百老汇手语音乐剧：无障碍如何成为艺术的一部分 30:29 城乡教育差距、资源不平等与聋人文化传播 36:12 为什么一定要去加劳德特大学（Gallaudet University）？ 46:17 艺术、无障碍与商业化：聋人创作如何才能真正持续？ 00:10 Opening | Why talk about sign language theatre? 03:05 What is sign language theatre? How does it differ from Deaf theatre? 08:42 The rise and fall of the National Theatre of the Deaf: the latest state of things, as we saw it in New York 12:31 Deaf West Theatre: a more flexible, more sustainable model for Deaf theatre companies 16:20 The development of sign language theatre in China: works like Paper Crane and The Story of the Bird 20:54 Deaf theatre, identity, and sign language as an artistic language 24:15 Broadway sign language musicals: how accessibility becomes part of the art 30:29 The urban-rural education gap, unequal resources, and the spread of Deaf culture 36:12 Why go to Gallaudet University? 46:17 Art, accessibility, and commercialization: how can Deaf creative work truly be sustained? 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： 海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: [email protected]

本期节目文字稿 【聊了什么 The What】 5月17日全国助残日前夕，一则“百万粉丝盲人博主在盲道被电动车撞倒”的视频冲上热搜。随后，北京警方通报该事件系摆拍，涉事人员被采取刑事强制措施。舆论迅速反转。这一期，我们邀请了视障朋友孔铭，小提琴手和预备博士，一起聊聊“盲兔事件”背后的残障网红经济、公众对残障者的想象，以及互联网时代真实表达的困境。为什么公众总在怀疑盲人是不是“真盲”？当残障者成为流量商品后，真实还重要吗？而真正的问题，究竟是摆拍，还是大众从未真正理解残障者的生活？ On the eve of National Disability Day, a video exploded across Chinese social media: a blind influencer with millions of followers appeared to be knocked down by an e-scooter while walking on a tactile paving path. Soon after, Beijing police announced the incident had been staged. The people involved were criminally charged. Public opinion flipped almost overnight. In this episode, we’re joined by Kong Ming, a visually impaired violinist and soon-to-be PhD student, to unpack the deeper issues underneath the controversy: the rise of disability influencers, the public’s imagination of what disability is supposed to look like, and the impossible tension of trying to present an “authentic” disabled life online. Why are disabled people constantly asked to prove they’re “disabled enough”? When disability becomes a commodity, can authenticity still exist? And is the real issue the staged video itself, or the fact that so many people still don’t understand what it actually means to live with a disability? 【时间轴 The When】 00:00:00｜盲兔事件始末：从热搜到“摆拍”反转 00:05:27｜“一颗老鼠屎坏了一锅粥”：残障群体的愤怒与失望 00:10:23｜真实存在的危险：视障者在城市中的出行困境 00:20:43｜当平台开始怀疑残障者：限流、封杀与“真实性” 00:29:47｜MCN、流量与残障网红工业化 00:34:33｜盲人并不只有一种：关于视力障碍的重要科普 00:44:00｜摆拍为什么会引发如此巨大的舆论反噬 00:53:17｜金钱、理想与“残障身份”：我们到底想成为谁？ 00:00:00 | The controversy: From Viral Sensation to “Staged” Scandal 00:05:27 | Anger and Disappointment Within the Disability Community 00:10:23 | The Danger Is Real: Challenges Faced by Blind and Visually Impaired People in Cities 00:20:43 | When Platforms Start Distrusting Disabled Creators: Shadowbanning, Deplatforming, and the Question of “Authenticity.” 00:29:47 | MCNs, Algorithms, and the Industrialization of Disability Influencers 00:34:33 | Blindness Is Not One Thing: Essential Context on Visual Impairment 00:44:00 | Why the Staged Video Triggered Such an Intense Public Backlash 00:53:17 | Money, Ideals, and Disability Identity: Who Are We Actually Trying to Become? 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 仁慈：假肢使用者，残障研究者，过气网红。 八如：INFJ听人，艺术家兼美国聋校教师。 孔铭：盲人，导盲犬使用者，音乐家。 Renci: Prosthetic user, disability studies researcher, former influencer Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality. Kong Ming: Blind, guide dog user, musician 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： 海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: [email protected]

本期节目文字稿 【聊了什么 The What】 我们如何看待那些“不完美”的身体？在这场对话中，主播仁慈与好友孔铭、彦林一起，剥开非残障者面对残障群体时复杂且微妙的情感外壳。从“宁愿死也不愿残障”的极端恐惧，到带有优越感的怜悯，这些情绪背后隐藏着我们对生命不确定性的深层焦虑，以及对人生失控的本能抵制。我们探讨了这些情感的根源，并试图寻找一种更理想的连接方式：跨越种族、阶级、性别与身体状态的“共情”，在现实中是否真的可能？ How do we perceive "imperfect" bodies? In this episode, host Renci joins friends Kong Ming and Yan Lin to peel back the complex and subtle layers of emotion that non-disabled people feel toward the disability community. From the extreme fear of "rather being dead than disabled" to the subtle condescension of pity, these emotions mask a deep-seated anxiety about life’s uncertainty and an instinctive resistance to losing control. We explore the roots of these feelings and ask: is a more ideal form of connection—an empathy that transcends race, class, gender, and physical ability—actually possible in reality? 【时间轴 The When】 00:02:00｜残障是如何流动到每个人身边的？ 00:05:00｜“如果我变成了残障者，我就不想活了” 00:09:55｜对残障者的打量为什么会不礼貌？ 00:13:15｜为什么有人残障这个状态会恐惧？ 00:19:00｜拒绝残障的身体是在拒绝存在的不确定性 00:21:00｜对医学与康复的迷信让我们难以与残障的身体共存 00:23:00｜对残障者的怜悯/可怜是一件好事吗？ 00:28:50｜可怜与恐惧都反映了我们的价值观 00:32:18｜与残障者共情才能真正尊重残障者的存在？ 00:36:36｜跨越种族、性别、身体状态的共情是否可能？ 00:41:07｜基于刻板印象的贴标签符合生物本能，但那是正确的吗？ 00:43:11｜如果残障状态无法避免，我们想生活在什么样的社会？ 00:48:44｜残障在社会中的可见度决定了对残障的情感 00:02:00 | How disability flows into everyone’s life 00:05:00 | "If I became disabled, I wouldn't want to live anymore" 00:09:55 | Why is staring at people with disabilities considered impolite? 00:13:15 | Why are some people afraid of the state of being disabled? 00:19:00 | Rejecting a disabled body is a rejection of the uncertainty of existence 00:21:00 | How a fixation on medicine and "recovery" makes it hard to coexist with disabled bodies 00:23:00 | Is pitying or feeling sorry for people with disabilities a good thing? 00:28:50 | Both pity and fear reflect our core values 00:32:18 | Can we only truly respect the existence of disabled people through empathy? 00:36:36 | Is empathy that transcends race, gender, and physical ability even possible? 00:41:07 | Labeling based on stereotypes aligns with biological instinct—but is it right? 00:43:11 | If disability is inevitable, what kind of society do we want to live in? 00:48:44 | The visibility of disability in society determines our emotional response toward it 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 仁慈：假肢使用者，残障研究者，过气网红。 孔铭：盲人，导盲犬使用者，音乐家。 彦林，杜克大学哲学博士生，在慢性病中做田野的哲学家 Renci: Prosthetic user, disability studies researcher, former influencer Kong Ming: Blind, guide dog user, musician Yan Lin: Duke University philosophy PhD student, philosopher doing fieldwork through chronic illness 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： 海外用户：patreon.com/disabledtalks 海内用户：afdian.com/a/disabledtalks 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: Those Abroad: patreon.com/disabledtalks Those in China: afdian.com/a/disabledtalks Business Inquiries Email: [email protected]