In this Complex Care Journal Club podcast episode, Drs. Astrida Kaugars and Jessica Schnell discuss a measure development and preliminary validation study of a Complex Care Program Family Impact Questionnaire. They describe the importance of capturing the value of complex care programs, the four domains of program impact that were identified (general satisfaction, caregiver well-being, family well-being, and medical care empowerment), and next steps from this work.
SPEAKERS
Astrida Kaugars, PhD
Professor, Psychology
Marquette University
Jessica L. Schnell, MD, MPH
Associate Professor of Pediatrics, Complex Care
Medical College of Wisconsin
HOST
Emily J. Goodwin, MD
Clinical Associate Professor of Pediatrics,
University of Missouri, Kansas City School of Medicine
Pediatrician, General Academic Pediatrics Beacon Program,
Children’s Mercy, Kansas City
DATE
Initial publication date: March 10, 2026.
JOURNAL CLUB ARTICLE
Kaugars AS, Bungert N, Lee KJ, Michlig J, Oswald DL, Paul MK, Quates SK, Schnell JL. Capturing caregivers' and families' experiences in a Complex Care Program: development of the Complex Care Program-Family Impact Questionnaire (CCP-FIQ). J Pediatr Psychol. 2025 Nov 16:jsaf096. doi: 10.1093/jpepsy/jsaf096. Epub ahead of print. PMID: 41241776; PMCID: PMC12826604.
TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/qkc6tx5crb2k4pp6fpbc4gf/Kaugars_and_Schnell_final_transcript
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CITATION
Kaugars A, Schnell JL, Goodwin EJ. Measuring the Value of Complex Care Programs to Families, With Families. 3/2026. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/measuring-the-value-of-complex-care-programs-to-families-with-families.