<p>This episode is about my album Glitter, and the pieces of my story with VEDS (Vascular Ehlers-Danlos Syndrome) that went into it. This album was produced through my record label, Sillybug Studios, LLC. </p> <p>Carry the Torch Music Video: <a href="https://youtu.be/8d2Z7Ozj-i8 ">https://youtu.be/8d2Z7Ozj-i8 </a></p> <p>Glitter Music Video: <a href="https://youtu.be/9GUohGLPg5s">https://youtu.be/9GUohGLPg5s</a></p> <p>You can listen to Glitter wherever you stream your music. I also have vinyls available through ElasticStage: <a href="https://elasticstage.com/katiewright">https://elasticstage.com/katiewright</a> </p> <p><strong>Other info:</strong></p> <p>Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at <a href="http://thevedsmovement.org">thevedsmovement.org</a>, <a href="http://loeysdietz.org">loeysdietz.org</a>, and <a href="http://marfan.org">marfan.org</a>.&nbsp;You can also find information and resources through the John Ritter Foundation, <a href="https://johnritterfoundation.org" title="johnritterfoundation.org">johnritterfoundation.org</a> </p> <p><strong>Links to resources, events, and research opportunities:&nbsp;</strong></p> <p>VEDS Collaborative Research Study: Email <a href="mailto:[email protected]">[email protected]</a>&nbsp;</p> <p>Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:</p> <p><a href="https://marfan.org/calendar">https://marfan.org/calendar</a></p> <p>Join a Walk for Victory:</p> <p><a href="https://marfan.org/walk/">https://marfan.org/walk/</a></p> <p>Help and Resource Center<br><br><a href="https://marfan.org/ask">https://marfan.org/ask</a></p> <p><a href="https://loeysdietz.org/ask">https://loeysdietz.org/ask</a></p> <p><a href="https://thevedsmovement.org/ask">https://thevedsmovement.org/ask</a></p> <p><strong>Listener Survey</strong></p> <p><a href="https://www.surveymonkey.com/r/8W37WKN" title="">https://www.surveymonkey.com/r/8W37WKN</a> </p> <p><strong>Support</strong></p> <p>Merch! You can now buy merch that helps you raise awareness of VEDS, Marfan, and Loeys-Dietz while supporting Staying Connected at my Printify pop-up store: <a href="https://staying-connected.printify.me/products">https://staying-connected.printify.me/products</a>&nbsp;</p> <p>You can make a one-time donation to Translucent One LLC at <a href="https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8">https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8</a>, or you can also support this podcast by subscribing to my Patreon at <a href="https://www.patreon.com/Translucentone">https://www.patreon.com/Translucentone</a>. </p> <p>Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:</p> <p>Jon Holtom<br>Adventuresinlove4Andie<br>Ryan Rodarmer<br>Benjamin Weisman<br>Fiona McIver</p> <p><strong>Disclaimer</strong></p> <p>The views, information or opinions in the blog, podcasts and vlogs are solely those of the individuals involved and do not represent the opinions of The Marfan Foundation. The Marfan Foundation is not responsible and does not verify for accuracy any of the information contained in them nor does the information constitute medical or other professional advice or services. 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