<p>In this episode, we’re going to talk with Mike Osuna and Jeanette Garcia-Osuna about their son, Lucas’s, story with Loeys-Dietz syndrome, type 2. Lucas died at the age of 15 from an aortic dissection and Loeys-Dietz, which he was diagnosed with in autopsy. </p>
<p>Heads up, in this interview we will talk about what happened to Lucas that day. Please listen with care, take breaks, and seek support if you need to.</p>
<p><strong>Information and links mentioned in the interview:</strong></p>
<p>Join or Donate to Team Lucas #19 at the South Florida Walk for Victory: <a href="https://give.marfan.org/team/780397">https://give.marfan.org/team/780397</a> </p>
<p>Grief and Loss support group at The Marfan Foundation <a href="https://marfan.org/calendar/grief-and-loss/">https://marfan.org/calendar/grief-and-loss/</a> </p>
<p>Autopsy laws involved deaths of minors in the US: <a href="https://worldpopulationreview.com/state-rankings/autopsy-laws-by-state">https://worldpopulationreview.com/state-rankings/autopsy-laws-by-state</a> </p>
<p>Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at <a href="http://thevedsmovement.org">thevedsmovement.org</a>, <a href="http://loeysdietz.org">loeysdietz.org</a>, and <a href="http://marfan.org">marfan.org</a>. You can also find information and resources through the John Ritter Foundation, <a href="https://johnritterfoundation.org" title="johnritterfoundation.org">johnritterfoundation.org</a> </p>
<p><strong>Links to resources, events, and research opportunities: </strong></p>
<p>VEDS Collaborative Research Study: Email <a href="mailto:
[email protected]">
[email protected]</a> </p>
<p>Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:</p>
<p><a href="https://marfan.org/calendar">https://marfan.org/calendar</a></p>
<p>Join a Walk for Victory:</p>
<p><a href="https://marfan.org/walk/">https://marfan.org/walk/</a></p>
<p>Help and Resource Center<br><br><a href="https://marfan.org/ask">https://marfan.org/ask</a></p>
<p><a href="https://loeysdietz.org/ask">https://loeysdietz.org/ask</a></p>
<p><a href="https://thevedsmovement.org/ask">https://thevedsmovement.org/ask</a></p>
<p><strong>Support</strong></p>
<p>Merch! You can now buy merch that helps you raise awareness of VEDS, Marfan, and Loeys-Dietz while supporting Staying Connected at my Printify pop-up store: <a href="https://staying-connected.printify.me/products">https://staying-connected.printify.me/products</a> </p>
<p>You can make a one-time donation to Translucent One LLC at <a href="https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8">https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8</a>, or you can also support this podcast by subscribing to my Patreon at <a href="https://www.patreon.com/Translucentone">https://www.patreon.com/Translucentone</a>. </p>
<p>Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:</p>
<p>Jon Holtom<br>Adventuresinlove4Andie<br>Ryan Rodarmer<br>Benjamin Weisman<br>Fiona McIver</p>
<p><strong>Disclaimer</strong> </p>
<p>The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer. </p>
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