Reconnecting with Dr. Shaine Morris
<p>In this episode, we’re going to talk to Dr. Shaine Morris, a pediatric cardiologist at Texas Children’s Hospital in Houston, Texas who is well known in our community. Shaine was on the show in 2021, and in episode she joins us again to share updates in research and care for people with VEDS, Marfan syndrome, and Loeys-Dietz. </p>
<p><strong>Links mentioned in the episode: </strong></p>
<p>Join the CLARITY registry: <a href="http://clarityregistry.com">clarityregistry.com</a> </p>
<p>Join the Heartmath study: Email Shaine at
[email protected] or register using the CLARITY study website</p>
<p>Join the Marfan exercise study: Email
[email protected] or register using the CLARITY study website </p>
<p>Fund Shaine’s research: <a href="https://www.texaschildrens.org/research/areas-research/cardiovascular-genetics">https://www.texaschildrens.org/research/areas-research/cardiovascular-genetics</a> </p>
<p>The VEDS Movement Research Update Webinar 2024: <a href="https://youtube.com/watch?v=JjyD5-8o8ts">https://youtube.com/watch?v=JjyD5-8o8ts</a></p>
<p>Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at <a href="http://thevedsmovement.org">thevedsmovement.org</a>, <a href="http://loeysdietz.org">loeysdietz.org</a>, and <a href="http://marfan.org">marfan.org</a>. You can also find information and resources through the John Ritter Foundation, <a href="https://johnritterfoundation.org" title="johnritterfoundation.org">johnritterfoundation.org</a> </p>
<p><strong>Links to resources, events, and research opportunities: </strong></p>
<p>VEDS Collaborative Research Study: Email <a href="mailto:
[email protected]">
[email protected]</a> </p>
<p>Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:</p>
<p><a href="https://marfan.org/calendar">https://marfan.org/calendar</a></p>
<p>Join a Walk for Victory:</p>
<p><a href="https://marfan.org/walk/">https://marfan.org/walk/</a></p>
<p>Help and Resource Center<br><br><a href="https://marfan.org/ask">https://marfan.org/ask</a></p>
<p><a href="https://loeysdietz.org/ask">https://loeysdietz.org/ask</a></p>
<p><a href="https://thevedsmovement.org/ask">https://thevedsmovement.org/ask</a></p>
<p><strong>Listener Survey</strong></p>
<p><a href="https://www.surveymonkey.com/r/8W37WKN" title="">https://www.surveymonkey.com/r/8W37WKN</a> </p>
<p><strong>Support</strong></p>
<p>Merch! You can now buy merch that helps you raise awareness of VEDS, Marfan, and Loeys-Dietz while supporting Staying Connected at my Printify pop-up store: <a href="https://staying-connected.printify.me/products">https://staying-connected.printify.me/products</a> </p>
<p>You can make a one-time donation to Translucent One LLC at <a href="https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8">https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8</a>, or you can also support this podcast by subscribing to my Patreon at <a href="https://www.patreon.com/Translucentone">https://www.patreon.com/Translucentone</a>. </p>
<p>Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:</p>
<p>Jon Holtom<br>Adventuresinlove4Andie<br>Ryan Rodarmer<br>Benjamin Weisman<br>Fiona McIver</p>
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