<p>In this episode, we talk with Robyn Beer, who was diagnosed with VEDS, or Vascular Ehlers-Danlos syndrome, last year. One of her sons was also diagnosed. In this episode, she shares how she got her diagnosis, and how she is moving forward with it. </p> <p>Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at <a href="http://thevedsmovement.org">thevedsmovement.org</a>, <a href="http://loeysdietz.org">loeysdietz.org</a>, and <a href="http://marfan.org">marfan.org</a>. You can also find information and resources through the John Ritter Foundation, <a href="https://johnritterfoundation.org" title="johnritterfoundation.org">johnritterfoundation.org</a> </p> <p><strong>Links to resources, events, and research opportunities:&nbsp;</strong></p> <p>VEDS Collaborative Research Study: Email <a href="mailto:[email protected]">[email protected]</a>&nbsp;</p> <p>Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:</p> <p><a href="https://marfan.org/calendar">https://marfan.org/calendar</a></p> <p>Join a Walk for Victory:</p> <p><a href="https://marfan.org/walk/">https://marfan.org/walk/</a></p> <p>Help and Resource Center<br><br><a href="https://marfan.org/ask">https://marfan.org/ask</a></p> <p><a href="https://loeysdietz.org/ask">https://loeysdietz.org/ask</a></p> <p><a href="https://thevedsmovement.org/ask">https://thevedsmovement.org/ask</a></p> <p><strong>Support</strong></p> <p>Merch! You can now buy merch that helps you raise awareness of VEDS, Marfan, and Loeys-Dietz while supporting Staying Connected at my Printify pop-up store: <a href="https://staying-connected.printify.me/products">https://staying-connected.printify.me/products</a>&nbsp;</p> <p>You can make a one-time donation to Translucent One LLC at <a href="https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8">https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8</a>, or you can also support this podcast by subscribing to my Patreon at <a href="https://www.patreon.com/Translucentone">https://www.patreon.com/Translucentone</a>. </p> <p>Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:</p> <p>Jon Holtom<br>Adventuresinlove4Andie<br>Ryan Rodarmer<br>Benjamin Weisman<br>Fiona McIver</p> <p><strong>Disclaimer</strong>&nbsp;</p> <p>The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. 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