Crohn’s Fitness Food

Ashley Zuchelli shares her journey with Crohn's disease, from the onset of symptoms to her recent diagnosis. She discusses the challenges she faced in finding a doctor who would listen and the frustration of not knowing what was causing her symptoms. Ashley also talks about the impact of Crohn's on her work and how she manages anxiety. Finally, she shares her motivation for advocacy and raising awareness about IBD. In this conversation, Ashley Zuchelli shares her journey with IBD and the challenges she faced in getting a diagnosis. She emphasizes the importance of realizing when something is wrong and seeking help, even when faced with fears and uncertainties. The conversation also highlights the difficulties doctors face in diagnosing IBD and the need for patients to advocate for themselves. Ashley encourages listeners to not give up on their goals, to prioritize their health, and to listen to our bodies and not dismiss symptoms. Takeaways Finding a supportive and understanding doctor is crucial in the journey to diagnosis and treatment. Managing anxiety and stress is important for overall well-being and symptom management. Having a flexible work schedule can be beneficial for individuals with IBD to accommodate flare-ups and self-care. Sharing personal stories and advocating for awareness can help others going through similar experiences. Realizing when something is wrong and seeking help is crucial for managing IBD. Don't let fears and uncertainties prevent you from seeking the care you need. Advocate for yourself and communicate your symptoms and concerns to your doctor. Don't give up on your goals and prioritize your health. Connect with others who have similar experiences for support and guidance. Topics covered in the interview Ashley's Journey with Crohn's Disease Seeking a New Doctor for a Diagnosis Diagnosis and Treatment Managing Anxiety and Balancing Work Realizing Something's Wrong The Importance of Seeking Help The Challenges of Diagnosing IBD Don't Give Up on Your Goals Don't Disregard Your Body's Signals From the show Stephanie: What have you done over the years to help manage anxiety? Ashley: I would say meal prepping actually soothes me and it keeps my mind at ease because I know if I am hungry or if…I’m feeling good that day, I have food ready for me and it just makes me happy just cooking in the kitchen…And then I started doing the HelloFresh program, where I get ingredients sent to me and then I just cook. I don't have to think about the recipes. They have dietary restrictions on there of things you can and cannot eat, so that helps my anxiety—to make sure I have the food I need when I have a long day at work or if we go travel. feeling so great today or, you know, I do have that type of job where if I wasn't feeling well, I can block that time and deal with what I need to deal with. If I had a flare or upset stomach from eating something or just. Stephanie: How do you balance work and work in IBD? Ashley: You know, Crohn's being Crohn's, acting up when it's not the best time, so I was just honest with my clients. Like if I didn't feel well, like I have to go to the bathroom, [saying] I'll be right back. We don't discuss what happens in the bathroom, but they know I need a moment to break away because of issues going on…I am grateful that I have the luxury to make my own schedule when a flare happens. Links from the show: Follow Ashley: https://www.instagram.com/azuchelli4 * * * * * Support the podcast ❤️ at https://www.crohnsfitnessfood.com Shop my favorite products, Read my favorite books, Subscribe to the podcast, Send a little love/coffee 😉 More at crohnsfitnessfood.com Want to share your story? Send me a message here or email [email protected] #crohns #crohnsdisease #ulcerativecolitis #ibd #podcasthost #healthpodcast #chronicillness #chronicillnesspodcast #ostomy

Back on medication and mindset changes during my Crohn’s journey It’s been over 20 years since my colon started bleeding and my inflammatory bowel disease (IBD) journey began. In 2003, I ignored the symptoms of blood, pain, and bloating for nearly three years. When I finally sought help in 2006 after a severe flare, it took another three years to reach a diagnosis. In those first six years, I was left to my own devices to try and stop the symptoms and find some way of living a normal life.  When I finally had an IBD diagnosis in 2009, I was relieved to have answers and eager for pharmaceutical help to finally eliminate my symptoms. Eventually, I ended up on a combination therapy of both Imuran and HUMIRA. I got better, but not completely. I didn’t have the uncontrollable diarrhea that kept me at home for three months during my first severe flare-up, but I still struggled off and on with pain, blood, and mucus.  I found that I had to watch my diet in order to get the most relief, and my obsession with food and supplements became fanatical. Then, after five years, I thought I had learned and experimented enough that I could stop my medications. And so, under the supervision of my gastroenterologist, I did. I was 32 years old. I was completely free of medications for a little over a year. But, when I started living life again – enjoying food and finding myself in stressful situations that life tends to bring – I went into a moderate flare. I went back on medications for a few months and by the end of 2016, I was off all medications once again. After that, I had multiple minor flare-ups during the next few years involving pain, mucus, and bloating, that I was able to work through using CBD, extended fasting, meditation, and extremely restrictive diets. I didn’t seek medication or medical help and thought I was doing fine. In early 2022, I was actually feeling really good and the minor flare-ups seemed to be behind me. But, as many of you can guess how this story goes, IBD wasn’t done with me. In the summer of 2022, I had my first bout of intestinal bleeding in over five years. I tried to seek help, but the flare happened during the middle of our move from Texas to Florida and I couldn’t get set up with my new doctors in Florida without going through a few hoops with the Department of Veterans Affairs (VA). It was (and I’m sure still is) a requirement that I see my new primary care doctor first, and then she would need to put in new referrals for me to be seen in the gastroenterology and nephrology clinics – even though I already had those specialists assigned to me in Texas.  By the time I got to see my new doctors, my symptoms had fortunately gone away and I was back to feeling good. But, that only got me dismissed by the VA’s gastroenterologist and another four month wait to get assigned to a gastroenterologist in the VA’s community care network, thanks to the help of my primary care provider.    For the past year and a half, I’ve been well. But we all know that IBD is a disease of remission and flare-ups. Fast forward to today, not even a full two years later, and I’m back in a moderate flare. This time, while it’s not the worst I’ve ever been, it’s the worst I’ve been in a long time. For the past two months, I’ve been passing blood and mucus up to twelve times a day, frequently nauseous, fatigued (so fatigued!) with low iron saturation showing on my lab results, experiencing intermittent pain and extreme bloating (my fellow IBD warriors know what I’m talking about), and feeling pretty lousy overall. Even my kidney function has declined (it’s still fine and we’re still watching it, but I find it interesting to see distinct changes in my lab values while my body battles inflammation from Crohn’s). I’ve still been able to leave the house and do things, but the dread of being anywhere not close to a bathroom is back. I’ve been avoiding meals with friends, fasting a few hours longer than usual if I’m going to be out run

Dr. Natalie Scheeler, a naturopathic doctor specializing in integrative treatments for gastrointestinal conditions, shares her perspective and valuable insights on gut health. She discusses the difference between naturopathic doctors and traditional MDs, the use of fecal microbiota transplant (FMT) and Helminthic therapies in treating inflammatory bowel disease (IBD), the impact of food and probiotics on IBD, and trends in flare management and remission. Dr. Scheeler also provides information about her practice, Modrn Med, and offers a final message of hope and encouragement for patients seeking alternative or complementary treatment options. Takeaways Naturopathic doctors focus on preventative medicine and finding the root cause through a whole person approach using integrative treatments that can be used alongside conventional therapies. Fecal microbiota transplant (FMT) and Helminthic therapies are alternative treatments for IBD that show promise in inducing remission and maintaining gut health. Diet plays a significant role in creating a diverse microbiome. Modrn Med is an integrative and functional medicine practice that offers telehealth consultations and works in collaboration with other healthcare providers. There are other treatment options available for patients who have not found success with conventional therapies, and it is important to work with a knowledgeable practitioner to explore these options. Topics covered in the interview Difference Between Naturopathic Doctors (ND) and traditional doctors (MD or DO) Integrative Treatments for Gastrointestinal Conditions Fecal Microbiota Transplant (FMT) Impact of Food and Probiotics on IBD Trends in Flare Management and Remission Helminthic Therapies About Modrn Med From the show Stephanie: What are some of the trends that you've seen with helping people to get out of a flare and into remission? Dr. Scheeler: …the dietary aspect is a large trend I'm seeing I think, too, with social media. There's just the ability to spread so much information and so that is oftentimes how people coming into our office and have said, ‘I've tried these diets’ or ‘I've done these diets’ versus us kind of introducing them to that idea. So that's interesting. The other one is an herb called Qing Dai. It's a Chinese herb…which is an herb that can be really helpful for inducing remission, typically. We usually reserve it for remission induction versus maintenance therapy because there are some safety risks to that…I would always, always recommend working with a provider who's familiar with that herb…something that is important to say is that natural medicine isn't always safer, and it isn't always safe in general. There is risks associated with any treatments that you do. And so knowing those risks, having somebody who is familiar with those risks is important, especially if you are on the kind of quote-unquote conventional medications and add this stuff in, there could be interactions. Stephanie: Can you talk a little bit about the Modrn Med practice and what types of patients you see? Dr. Scheeler: Yeah, so ModernMed, we are a practice, we are all naturopathic doctors. There's four of us there. And we do integrative and functional medicine. A large part of our practice is gastrointestinal disease, including inflammatory bowel disease. I personally see patients exclusively via telehealth…but there is a location in LA, too, if people are interested. With that, since I do telehealth, I'm licensed in California, Arizona, Maryland, Vermont, and Connecticut, as of now. But all of us depending can either see you as patient if we're licensed in that state or do what we consider educational consults. So with patients who live out of state, we can share some of this information with you and help you do things safely or talk with your provider too…it’s very common for us to work with other providers, especially myself working with gastroenterologists. I think when we all work as a team is w

Enjoy this interview with Megan Starshak, an ulcerative colitis warrior, adventurer, runner, cyclist, patient advocate and co-founder of The Great Bowel Movement. In this conversation, Megan shares her journey with inflammatory bowel disease (IBD), her advocacy work, and how she balances life with chronic illness. She discusses her diagnosis of ulcerative colitis and the challenges she faced in finding effective treatments. Megan emphasizes the importance of finding a supportive community and offers advice for young adults with IBD. She also talks about her involvement with The Great Bowel Movement, an organization that aims to decrease the stigma surrounding IBD. Megan shares her career in marketing and how she uses her skills to support other patient advocates. She closes this interview with a message of empowerment and the importance of not wasting the challenges we face. Takeaways Finding a supportive community is crucial for individuals with IBD. Connecting with others who understand the challenges can provide a sense of belonging and empowerment. It is important for young adults with IBD to be proactive in their healthcare journey. Staying informed about treatment options and advocating for oneself can lead to better outcomes. The Great Bowel Movement is an organization that aims to decrease the stigma surrounding IBD. They provide resources and support for individuals living with IBD and encourage open conversations about the disease. Megan's career in marketing allows her to use her skills to support other patient advocates and help them share their stories. She believes in the power of storytelling and connecting ideas with the people who can make a difference. Living with a chronic illness can be challenging, but it can also lead to personal growth and resilience. Embracing the journey and finding meaning in the struggles can empower individuals to live their lives to the fullest. Topics covered in the interview Megan's IBD Story and Diagnosis Understanding IBD and Treatment The Impact of IBD on Daily Life Advice for Young Adults with IBD Navigating Treatment and Doctor Appointments Finding Effective Medications Life in Remission Navigating Food and Trigger Foods The Great Bowel Movement Megan's Career and Supporting Patient Advocates From the show Stephanie: Looking back at that time in your life and reflecting on when you were going through this as a college student, what advice would you give to other young adults who are living with a chronic illness? Megan: Advice for people going through that now would be just to keep yourself informed, and know that it's okay if you don't understand the deep science of what all the treatments are or what they do, but just know that there are options out there. There are so many more options now than I had when I was that age, which is really amazing for people to have just some more things on the table. It's kind of frustrating that you do have to take charge, that we're still in a place where nobody is really going to do this for you, but it's also kind of a good growing up action too. Start by understanding what's going on in your body, what's going on with your treatment, and managing the relationship with your doctor. Stephanie: What are your biggest takeaways from the lessons you’ve learned throughout your IBD journey? Megan: Understanding treatments and understanding nutrition and exercise, but also realizing you have to find what works specifically for you and that it might take a little bit of trial and error and working with your doctor to figure out what's going to be best. Also, coming to terms with what you wanted maybe isn't what the reality is; I gave up running, but I found cycling. I found an entire other sport that I love that I have met some really amazing friends through. So it's okay to pivot. It's okay if your best laid plans do not come to life. You're gonna be okay. Links from the show: The Great Bowel Movement: Website - https://thegreatbowe

Enjoy this interview with Leah Crumrine, a businesswoman, mother, and wife of IBD Warrior Logan Crumrine. Logan has been on the show to share his story with Crohn’s disease, but today, his wife Leah shares from her perspective about what it’s been like to walk along IBD with her husband. She shares her experience, insights, and tips for supporting those in your life with IBD. Summary Leah Crumrine shares her experience as a caregiver to her husband, Logan, who has Crohn's disease. She discusses the challenges they faced during Logan's flare-up, the changes in roles and responsibilities, and the importance of communication in their relationship. Leah also talks about managing food and family meal planning, communicating with their children about the disease, and the support system they had throughout their journey. She emphasizes the need for caregivers to prioritize self-care and balance, and offers advice for managing day-to-day flare-ups. Leah concludes by discussing the therapeutic aspect of advocacy and sharing their journey with others. This conversation explores the journey of Logan and Leah Crumrine as they navigate life with inflammatory bowel disease (IBD). It highlights their journey to recovery, reaching remission, finding balance, and hope and perseverance. Leah also offers support to others facing similar challenges and emphasizes the importance of continuous learning and love. Takeaways Prioritize self-care and balance as a caregiver. Communicate openly and honestly with your loved one about their needs. Create a support system of friends, family, or online communities. Learn as much as you can about IBD and advocate for your loved one's care. Make a plan for managing flare-ups. Enjoy moments of normalcy and adventure when your loved one is feeling well. Recovery from IBD is a journey that starts small and progresses over time. The story of Logan and Leah Crumrine is a testament to hope and perseverance in the face of adversity. Offering support and being open to conversations about IBD can make a significant difference in someone's life. Continuously learning and loving each other is essential in navigating the challenges of IBD. Topics covered in the interview Introduction to IBD and Logan's Flare Changes in Roles and Responsibilities Mourning the Loss of Expectations Balancing Responsibilities Self-Care and Finding Balance The Importance of Communication Asking Good Questions Managing Food and Family Meal Planning Communicating with Children Managing Day-to-Day Flare-Ups Advocacy and Sharing the Journey Importance of Support Systems Keep Learning and Loving From the show: Stephanie: What kind of advice would you give to someone facing a similar situation in becoming the caregiver and provider? Leah: I don't think that we knew going into it how much [life] would change, but I started having to take on more responsibility for things that we normally share, like cleaning the house, taking our boys to different things, going to different family events for holidays and things like that. Logan couldn't go to those things. And so my role really changed in our home to be the primary income earner, but also kind of the primary parent where, of course, those things were shared between us as well. And it was kind of shocking. I mean, I don't think anybody goes into a relationship or whatever, thinking this could totally get flipped on its head. But it really did. And the advice that I think that I would offer is to keep communicating through it and to be good to each other and yourself as a caregiver. Of course, I didn't know that's what I was becoming, but I was becoming a caregiver. And I don't think I realized just how significant that was gonna be…it really was kind of a role reversal, role change. So, again, just the advice of keeping communication open. There were times when we would look at each other and sit there and cry and just say the words out loud. Like, ‘I didn't think it was going to be this w